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Developing and evaluating guidelines for patient and public involvement (PPI) in research

Pollard, Katherine; Donskoy, Anne Laure; Moule, Pam; Donald, Christine; Lima, Michelle; Rice, Cathy

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Authors

Anne Laure Donskoy

Pam Moule

Christine Donald

Michelle Lima

Cathy Rice



Abstract

© Emerald Group Publishing Limited Purpose – A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. Design/methodology/approach – PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners’ experience within another project. Findings – The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. Originality/value – The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.

Citation

Pollard, K., Donskoy, A. L., Moule, P., Donald, C., Lima, M., & Rice, C. (2015). Developing and evaluating guidelines for patient and public involvement (PPI) in research. International Journal of Health Care Quality Assurance, 28(2), 141-155. https://doi.org/10.1108/IJHCQA-01-2014-0001

Journal Article Type Article
Publication Date Jan 1, 2015
Deposit Date Oct 30, 2014
Publicly Available Date Nov 15, 2016
Journal International Journal of Health Care Quality Assurance
Print ISSN 0952-6862
Publisher Emerald
Peer Reviewed Peer Reviewed
Volume 28
Issue 2
Pages 141-155
DOI https://doi.org/10.1108/IJHCQA-01-2014-0001
Keywords patient and public involvement
Public URL https://uwe-repository.worktribe.com/output/839114
Publisher URL http://dx.doi.org/10.1108/IJHCQA-01-2014-0001
Additional Information Additional Information : This article is (c) Emerald Group Publishing and permission has been granted for this version to appear here (http://eprints.uwe.ac.uk/24229/). Emerald does not grant permission for this article to be further copied/distributed or hosted elsewhere without the express permission from Emerald Group Publishing Limited.

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HEIF october 14paper final submitted version.docx (76 Kb)
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