Towards the development of the psychosocial impact of assistive devices scale for continence (C-PIADS)

Long, A.; Southall, K.; Fowler, S.; Cotterill, N.; Van Den Heuvel, E.; Jutai, J. W.

Abstract

© 2014 - IOS Press and the authors. All rights reserved. BACKGROUND: Current outcome measures for continence management devices do not adequately address psychosocial impact. The PIADS is an assessment tool that has been shown to reliably predict the adoption and use of assistive technology devices, but it is not widely used for continence devices.OBJECTIVE: To explore whether the PIADS requires modification to address the particular needs of continence device users and to inform any subsequent item development.METHODS: The study used interpretive methods in which qualitative information from semi-structured interviews was combined with the findings from cognitive interviews for questionnaire pre-testing. A total of 40 participants in UK and Canada were interviewed.CONCLUSIONS: The PIADS appears to fundamentally address many, but not all, of the important psychosocial concerns of adults who have continence difficulties. A version for continence, the C-PIADS, will require modification of the PIADS and is likely to contain some new items.RESULTS: Few participants had difficulty in understanding or relating to the majority of PIADS items. Several items were not considered relevant to continence and some areas for potential new items were uncovered. Embarrassment and concealment of urinary incontinence from others were common topics.

• Journal Article Type: Article
• Acceptance Date: Nov 17, 2014
• Publication Date: Jan 1, 2014
• Publicly Available Date: Jun 6, 2019
• Journal: Technology and Disability
• Print ISSN: 1055-4181
• Publisher: IOS Press
• Peer Reviewed: Peer Reviewed
• Volume: 26
• Issue: 2-3
• Pages: 153-160
• DOI: https://doi.org/10.3233/TAD-140413
• Keywords: continence, PIADS, quality of life, patient-reported outcomes, questionnaire
• Public URL: https://uwe-repository.worktribe.com/output/808434
• Publisher URL: http://dx.doi.org/10.3233/TAD-140413
• Additional Information: Additional Information : This is the author's accepted manuscript. The final published version is available here: http://dx.doi.org/10.3233/TAD-140413.