Longitudinal and idiographic methods of developing and evaluating tailored psychological interventions for people with MS: Findings from a pilot study and future directions

Fragkiadaki, Eva; Nizza, Isabella; Smith, Jonathan; Rice, Claire; Cotterill, Nikki

Abstract

Multiple Sclerosis (MS) is a complex and heterogeneous condition which makes the development of effective psychological interventions a challenging task. Research so far has focused on well-established protocols which do not always fit the individualised needs of people with MS. This pilot study investigated the feasibility and acceptability of “MyMS-Ally”, an online group intervention tailored to address the identified needs and preferences of people with MS. Over eight weekly sessions, five people with MS participated employing a longitudinal mixed-methods approach to assess intervention relevance, sustainability and adherence (feasibility) as well as emotional and cognitive responses, satisfaction and perceived effectiveness (acceptability). Additionally, outcome and change processes were evaluated as secondary aims of the study. Qualitative data were collected at baseline, termination and three-month follow up following Longitudinal Interpretative Phenomenological Analysis principles. Quantitative data were collected at baseline, termination, one-month and three-month follow up, focusing on within-subject effects, within an idiographic framework. Participants reported the benefits of sharing in the group, experiencing increasing empowerment and integration of MS in their everyday lives and identity. Openly discussing their MS and fostering a sense of belonging were valued, although confronting aspects of their condition proved challenging. Participants explored their representations of disability, the physical and mental facets of their MS, connecting with more authentic image of their future with the condition. The findings underscore the importance of tailored and individualised psychological interventions that meet the unique preferences and experiences of people with MS. Future research suggestions for idiographic, process-based therapy studies will be discussed.

• Presentation Conference Type: Presentation / Talk
• Conference Name: 6th Joint European & UK SPR Chapters Conference
• Start Date: Sep 12, 2024
• End Date: Sep 14, 2024
• Acceptance Date: Jun 18, 2024
• Deposit Date: Oct 4, 2024
• Publicly Available Date: Oct 4, 2024
• Peer Reviewed: Peer Reviewed
• Public URL: https://uwe-repository.worktribe.com/output/13264556