Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

Stiernman, Mia; Maulina, Ieva; Zepa, Inta; Jagom�gi, Triin; Tanaskovic, Nenad; Kne�evi?, Predrag; Velikova, Radost; Anastassov, Youri; Radoji?i?, Julija; Pesic, Zoran; Trifunovi?, Branislav; Drevensek, Martina; Spataru, Radu; Boljevic, Tanja; Dimovska, Radmila; Naumovski, Slave; Rumsey, Nichola; Zucchelli, Fabio; Sharratt, Nicholas; Argyrides, Mario; Klint�, Kristina; Becker, Magnus; Persson, Martin

Abstract

Background

There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Appearance and Speech Questionnaire (CHASQ) into eight European languages, to investigate whether levels of PRO in patients with cleft lip and/or cleft palate (CL/P) were comparable across countries and to investigate clinician experience of the instrument.


Methods

The PRO measure—CHASQ—was translated into Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish and implemented with patients in the respective countries. A focus group discussion was conducted to investigate health care professional experience on the use of CHASQ in their clinics. Data was analysed in accordance with the principles of thematic analysis.


Results

Analysis showed statistically significant differences between countries and groups of diagnosis in CHASQ scores. CHASQ helped clinicians gain patient information and informed on treatment decisions, broadened the clinicians’ role as caregivers and was perceived as short and easy to use. Limited time and resources in clinics were limitations in implementing the instrument.


Conclusions

Translation and utilization of CHASQ facilitated international comparison and cooperation. Linguistically, valid replicas of CHASQ are now available in many European languages. Results from this study show that CHASQ may be used for collection of PRO on patient satisfaction and to spark conversation between clinicians, patients and families.

• Journal Article Type: Article
• Acceptance Date: May 27, 2019
• Online Publication Date: Jun 7, 2019
• Publication Date: Dec 1, 2019
• Deposit Date: Jun 12, 2019
• Publicly Available Date: Jun 12, 2019
• Journal: European Journal of Plastic Surgery
• Print ISSN: 0930-343X
• Electronic ISSN: 1435-0130
• Publisher: Springer (part of Springer Nature)
• Peer Reviewed: Peer Reviewed
• Volume: 42
• Issue: 6
• Pages: 583-592
• DOI: https://doi.org/10.1007/s00238-019-01543-9
• Keywords: cleft, appearance, CHASQ, visible difference
• Public URL: https://uwe-repository.worktribe.com/output/1493134
• Publisher URL: https://doi.org/10.1007/s00238-019-01543-9
• Contract Date: Jun 12, 2019