Planning for the end of children's lives -the lifetime framework

Finlay, Fiona; Lewis, Mary; Lenton, S.; Poon, M.

Abstract

Aim: This paper describes the development of 'a best practice framework', following review of a sample of notes of children known to the Lifetime Service, where the child has a non-malignant life limiting condition, to improve child and family engagement in the planning process at the end of life. Background: There is very little literature about how to engage with families to decide end of life plans for children with life limiting conditions. Method: An audit of clinical case notes was followed by the development of 'a best practice framework'through a Delphi process involving clinical practitioners. Results: The 3×3 framework is presented to aid communication with parents and children at this difficult time of decision-making. Conclusion: This new framework has been well received by both parents and practitioners, and its use will be audited in the future. © 2008 The Author Journal compilation © 2008 Blackwell Publishing Ltd.

• Journal Article Type: Article
• Publication Date: Jul 1, 2008
• Journal: Child: Care, Health and Development
• Print ISSN: 0305-1862
• Electronic ISSN: 1365-2214
• Publisher: Wiley
• Peer Reviewed: Not Peer Reviewed
• Volume: 34
• Issue: 4
• Pages: 542-544
• DOI: https://doi.org/10.1111/j.1365-2214.2008.00843.x
• Keywords: end of life care, advanced care planning, children
• Public URL: https://uwe-repository.worktribe.com/output/1025398
• Publisher URL: http://dx.doi.org/10.1111/j.1365-2214.2008.00843.x