Professor Julie Mytton Julie.Mytton@uwe.ac.uk
Professor in Child Health
Professor Julie Mytton Julie.Mytton@uwe.ac.uk
Professor in Child Health
Viv Harrison
Aileen McLoughlin
Rosie Thompson
Tim Overton
Objective: Some congenital anomaly registers arc collecting data on risk factors for pregnancies affected by anomalies; yet the quality of that information is rarely assessed. We assessed the quality of the risk factor data in the South West Congenital Anomaly Register (SWCAR) through a review of the data held on folic acid use. in cases of neural tube defect (NTD). Methods: We reviewed all cases of NTD reported to SWCAR over 2 years and compared information held in the register with that in handwritten and computerised prenatal records, where available. Results: Data on folic acid use was recorded in only 41 (36.9%) of the prenatal records of the 111 cases of NTDs reviewed. Information on any folic acid use in the prenatal records was transferred to the register in all instances where it existed. Information on the time of taking folic acid or not taking folic acid was rarely recorded in prenatal records. Conclusion: Incomplete recording of folic acid use and timing in prenatal records has limited the ability of SWCAR to collect accurate information on folic acid use in cases of NTDs. Minimal recording information on folic acid use in prenatal records is suggested. Copyright © 2008 John Wiley & Sons, Ltd.
Journal Article Type | Article |
---|---|
Publication Date | Aug 1, 2008 |
Journal | Prenatal Diagnosis |
Print ISSN | 0197-3851 |
Electronic ISSN | 1097-0223 |
Publisher | Wiley |
Peer Reviewed | Peer Reviewed |
Volume | 28 |
Issue | 8 |
Pages | 722-726 |
DOI | https://doi.org/10.1002/pd.2034 |
Keywords | registries, abnormalities, data collection, population surveillance, neural tube defects, folic acid |
Public URL | https://uwe-repository.worktribe.com/output/1010459 |
Publisher URL | http://dx.doi.org/10.1002/pd.2034 |
About UWE Bristol Research Repository
Administrator e-mail: repository@uwe.ac.uk
This application uses the following open-source libraries:
Apache License Version 2.0 (http://www.apache.org/licenses/)
Apache License Version 2.0 (http://www.apache.org/licenses/)
SIL OFL 1.1 (http://scripts.sil.org/OFL)
MIT License (http://opensource.org/licenses/mit-license.html)
CC BY 3.0 ( http://creativecommons.org/licenses/by/3.0/)
Powered by Worktribe © 2024
Advanced Search