PROMs measure patient needs and therapeutic progress. This paper outlines the valida-tion of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature re... Read More about The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’ - a Patient Reported Outcome Measure (PROM) using Rasch Measurement Theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury.
Outputs (243)
Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study (2025)
Journal Article
Injuries sustained during military conflict can significantly impact appearance. Yet, little is known about the psychosocial experiences of veterans with conflict-related appearance-altering injuries (AAI) and whether current civilian interventions a... Read More about Body image and appearance distress among military veterans and civilians with an injury-related visible difference: A comparison study.
Supporting individuals with a visible difference: A UK survey of needs and preferences (2024)
Journal Article
Individuals with visible differences, resulting from injuries, health conditions, or treatment, can face varied and lasting psychosocial effects. Existing psychosocial interventions are limited, with inconsistent support noted by specialists. Improve... Read More about Supporting individuals with a visible difference: A UK survey of needs and preferences.
"Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university (2024)
Journal Article
Appearance concerns are a pervasive issue affecting many university students and contributing to poor psychosocial and academic outcomes. To combat these, action is needed by universities to promote appearance inclusivity. The current study used indu... Read More about "Make sure that everybody feels there is a space for them": Understanding and promoting appearance inclusivity at university.
A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries (2024)
Journal Article
Objectives: Appearance concerns following burn injuries are common. Psychological factors are important in maintaining such concerns. However, there is a lack of longitudinal or prospective research investigating their development. This study investi... Read More about A multi‐centre prospective cohort study investigating the roles of psychological flexibility and self‐compassion in appearance concerns after burn injuries.
Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion (2024)
Journal Article
Few qualitative studies have explored appearance concerns soon after burn injuries. This study aimed to understand the early experiences of appearance concerns after burns, through the lens of psychological flexibility and self-compassion. Template a... Read More about Early appearance concerns after burns: Investigating the roles of psychological flexibility and self-compassion.
The acceptability of early psychological interventions for adults with appearance concerns after burns (2024)
Journal Article
Introduction
Appearance concerns are common following burns. However, there is a lack of research investigating early psychological interventions for appearance concerns. This qualitative study explored the acceptability of early psychological inter... Read More about The acceptability of early psychological interventions for adults with appearance concerns after burns.
‘Plan Z and then off the edge of a cliff’: An interpretative phenomenological analysis of mothers’ experience of living with a slow-to-heal Caesarean wound (2024)
Journal Article
Background: Studies indicate that complex postsurgical wound healing can significantly alter biopsychological markers responsible for recovery. Yet, there is a lack of research investigating women's experience of living with slow-to-heal Caesarean bi... Read More about ‘Plan Z and then off the edge of a cliff’: An interpretative phenomenological analysis of mothers’ experience of living with a slow-to-heal Caesarean wound.
Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article
Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.
More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences (2024)
Journal Article
Background: Adults with conditions that affect their appearance, known as visible differences, can experience appearance concerns, social anxiety, and depression. Interventions have been developed for this population to facilitate adjustment and copi... Read More about More than my appearance: A pilot evaluation of the Expand Your Horizon online functionality-based writing programme for adults with visible differences.
Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues (2024)
Journal Article
Combat-related physical injuries not only affect the individual but also close family members. Emerging evidence indicates that injuries that change appearance, such as limb loss and physical scarring, may create additional psychosocial challenges fo... Read More about Adjusting to a partners’ changed appearance following military combat-related appearance-altering injuries: The challenges of looking ‘different’ and how life continues.
Parental concerns about genital differences in children with congenital adrenal (2024)
Journal Article
Background
Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal.
Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article
Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital melanocytic naevus (CMN) through the lens: Using photo-elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.
Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition (2023)
Journal Article
Adolescents with the rare birthmarks congenital melanocytic naevi (CMN) experience physical and psychosocial challenges, many of which stem from looking different from the ‘norm’. However, some adjust and have positive experiences. Understanding the... Read More about Congenital Melanocytic Naevus (CMN) through the lens: Using photo- elicitation interviews to explore adjustment in adolescents with a rare birthmark condition.
‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary (2023)
Journal Article
Introduction
Those with an altered appearance as a result of injury, health condition or treatment can face stigma, which may contribute to adverse psychosocial outcomes. However, current research tends to focus on supporting individuals themselve... Read More about ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary.
Disclosing the obvious: Psychosocial implications of (not) explaining facial differences (2023)
Journal Article
Although the disclosure of invisible stigmatized identities has been frequently researched, little work has examined disclosure of facial differences (FD), in which stigma is often highly visible. People with FD are frequently expected by others to d... Read More about Disclosing the obvious: Psychosocial implications of (not) explaining facial differences.
Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article
Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.
Experiences and impact of the UK lockdown amongst adults who have a facial visible difference (2023)
Journal Article
Globally, COVID-19 has been shown to have had a wide ranging and significant impact on individuals’ daily living, and physical and mental health. However, there are some groups of individuals who may encounter unique challenges with regards to COVID-... Read More about Experiences and impact of the UK lockdown amongst adults who have a facial visible difference.
Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects (2022)
Journal Article
Purpose: Head and neck cancer (HNC) patients are at risk of long-term body image distress (BID). We aimed to investigate the severity of BID in long-term HNC survivors and to explore the associations between sociodemographic and clinical factors, pat... Read More about Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects.
What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review (2022)
Journal Article
Aim: To identify and review the success of non-pharmaceutical, non-surgical biopsychosocial interventions in individuals with endometriosis, in managing pain and improving body image. Methods: Cochrane, EBSCO, IBSS, NICE, Open Grey, OVID, Proquest, S... Read More about What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review.