The psychological impact of dependency in adults with
chronic fatigue syndrome/myalgic encephalomyelitis: A qualitative exploration

Williams, Ashley Mai; Christopher, Gary; Jenkinson, Elizabeth

Abstract

Chronic fatigue syndrome/myalgic encephalomyelitis can limit functional capacity, producing various degrees of disability and psychological distress. Semi-structured interviews explored the experiences of adults with chronic fatigue syndrome/myalgic encephalomyelitis being physically dependent on other people for help in daily life, and whether physical dependency affects their psychological well-being. Thematic analysis generated six themes: loss of independence and self-identity, an invisible illness, anxieties of today and the future, catch-22, internalised anger, and acceptance of the condition. The findings provide insight into the psychological impact of dependency. Implications for intervention include better education relating to chronic fatigue syndrome/myalgic encephalomyelitis for family members, carers, and friends; ways to communicate their needs to others who may not understand chronic fatigue syndrome/myalgic encephalomyelitis; and awareness that acceptance of the condition could improve psychological well-being.

• Journal Article Type: Article
• Acceptance Date: Mar 1, 2016
• Publication Date: Jan 1, 2016
• Deposit Date: May 23, 2016
• Publicly Available Date: May 23, 2016
• Journal: Journal of Health Psychology
• Print ISSN: 1359-1053
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• DOI: https://doi.org/10.1177/1359105316643376
• Keywords: adults, chronic fatigue syndrome, psychological distress, qualitative methods, well-being
• Public URL: https://uwe-repository.worktribe.com/output/924558
• Publisher URL: http://dx.doi.org/10.1177/1359105316643376
• Contract Date: May 23, 2016