Updating OMERACT core set of domains for ANCA-associated vasculitis: Patient perspective using the international classification of function, disability, and health

Milman, Nataliya; McConville, Eilish; Robson, Joanna C.; Boonen, Annelies; Tugwell, Peter; Wells, George A.; Chaudhuri, Dipayan; Dawson, Jill; Tomasson, Gunnar; Ashdown, Susan; Gebhart, Don; Lanier, Georgia; Peck, Jacqueline; McAlear, Carol A.; Kellom, Katherine S.; Cronholm, Peter F.; Merkel, Peter A.

Abstract

Objective: Aspects of ANCA-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health. Methods: Items identified during 14 individual interviews were incorporated into ICF-based questionnaire administered to participants of 2 vasculitis patient symposia, 36 in UK and 63 in USA. Results: Categories identified as at least “moderately relevant” by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors. Conclusion: Identified categories differ from those captured by the current OMERACT core set and those prioritized by vasculitis experts.

• Journal Article Type: Article
• Acceptance Date: Jan 1, 2019
• Online Publication Date: Feb 1, 2019
• Publication Date: Oct 1, 2019
• Deposit Date: Apr 16, 2019
• Publicly Available Date: Feb 2, 2020
• Journal: Journal of Rheumatology
• Print ISSN: 0315-162X
• Electronic ISSN: 1499-2752
• Publisher: Journal of Rheumatology
• Peer Reviewed: Peer Reviewed
• Volume: 46
• Issue: 10
• Pages: 1415-1420
• DOI: https://doi.org/10.3899/jrheum.181073
• Keywords: ICF framework, ANCA associated vasculitis, patient
• Public URL: https://uwe-repository.worktribe.com/output/852643
• Publisher URL: https://doi.org/10.3899/jrheum.181073
• Additional Information: Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.3899/jrheum.181073.
• Contract Date: Apr 16, 2019