Key stakeholder perspectives on primary care for young people with an eating disorder: A qualitative study

Malson, Helen; Tischner, Irmgard; Hertzig, Hugh; Kitney, Danielle; Phillips, Catherine; Norweg, Sanni; Moon, Jasmin; Holmes, Su; Wild, Katie; Oldham-Cooper, Rosie

Abstract

This paper examines the provision of primary care for young people with an eating disorder within the UK from the perspectives of three key stakeholder groups: young people with an eating disorder, carers of young people with an eating disorder and General Practitioners (GPs). 22 young people with an eating disorder (aged 16-25) and 10 carers completed qualitative questionnaires or participated in interviews about their experiences of seeking primary care from GPs. 41 GPs participated in either focus groups or interviews about delivering care to young people with eating disorders. Interviews and focus groups were audio-recorded and transcribed verbatim. All data were then analysed qualitatively using thematic analysis. Our analysis indicates that GPs often felt they lacked the necessary knowledge and/or resources to provide adequate support to young people with an eating disorder who they also often viewed as a ‘difficult’ patient group. Young people and carers expressed mixed but predominantly negative experiences, reporting that GPs often lacked adequate understanding of eating disorder, failed to take participants’ concerns seriously and delayed referring patients to specialist services. Our findings indicate a need for interventions that will improve primary care provision and access to appropriate support for young people with an eating disorder.

• Journal Article Type: Article
• Acceptance Date: Sep 14, 2021
• Online Publication Date: Oct 5, 2021
• Publication Date: 2022-04
• Deposit Date: Sep 15, 2021
• Publicly Available Date: Oct 6, 2022
• Journal: Journal of Community and Applied Social Psychology
• Print ISSN: 1052-9284
• Electronic ISSN: 1099-1298
• Publisher: Wiley
• Peer Reviewed: Peer Reviewed
• Volume: 32
• Issue: 2
• Pages: 288-301
• Series ISSN: 1099-1298
• DOI: https://doi.org/10.1002/casp.2575
• Keywords: young people, eating disorders, carers, general practitioners, primary care, qualitative research
• Public URL: https://uwe-repository.worktribe.com/output/7773488
• Publisher URL: https://onlinelibrary.wiley.com/journal/10991298