Guy Schofield
Real-world ethics in palliative care: Protocol for a systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice
Schofield, Guy; Brangan, Emer; Dittborn, Mariana; Huxtable, Richard; Selman, Lucy
Authors
Emer Brangan Emer.Brangan@uwe.ac.uk
Senior Research Fellow
Mariana Dittborn
Richard Huxtable
Lucy Selman
Abstract
Introduction
Ethical issues arise daily in the delivery of palliative care. Despite much (largely theoretical) literature, evidence from specialist palliative care practitioners (SPCPs) about real-world ethical challenges has not previously been synthesised. This evidence is crucial to inform education and training and adequately support staff. The aim of this systematic review is to synthesise the evidence regarding the ethical challenges which SPCPs encounter during clinical practice.
Methods and Analysis
We will conduct a systematic review with narrative synthesis of empirical studies that use inductive methods to describe the ethical challenges reported by SPCPs. We will search multiple databases (MEDLINE, Philosopher’s Index, EMBASE, PsycINFO, LILACS, WHOLIS, Web of Science and CINAHL) without time, language or geographical restrictions. Keywords will be developed from scoping searches, consultation with information specialists, and reference to key systematic reviews in palliative care and bioethics. Reference lists of included studies will be hand-searched. 10% of retrieved titles and abstracts will be independently dual screened, as will all full text papers. Quality will be dual assessed using the Mixed-Methods Appraisal Tool (2018). Narrative synthesis following Popay et al (2006) will be used to synthesise findings. The strength of resulting recommendations will be assessed using the Grading of Recommendations Assessment, Development and Evaluation approach for qualitative evidence (GRADE-CERQual).
Ethics and Dissemination
As this review will include only published data, no specific ethical approval is required.We anticipate that the systematic review will be of interest to palliative care practitioners of all backgrounds, and educators in palliative care and medical ethics. Findings will be presented at conferences and published open access in a peer-reviewed journal.
| Journal Article Type | Article |
|---|---|
| Acceptance Date | May 2, 2019 |
| Online Publication Date | May 27, 2019 |
| Publication Date | May 27, 2019 |
| Deposit Date | Sep 26, 2019 |
| Publicly Available Date | Sep 27, 2019 |
| Journal | BMJ Open |
| Electronic ISSN | 2044-6055 |
| Publisher | BMJ Publishing Group |
| Peer Reviewed | Peer Reviewed |
| Volume | 9 |
| Pages | e028480 |
| DOI | https://doi.org/10.1136/bmjopen-2018-028480 |
| Keywords | empirical ethics, ethical challenges, medical ethics, palliative care, systematic review |
| Public URL | https://uwe-repository.worktribe.com/output/3241070 |
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Real-world ethics in palliative care: protocol for a systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice
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Copyright Statement
© Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY. Published by BMJ.
This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
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