Stakeholder requirements for an ethical framework to sustain multiple research projects in an emerging living lab involving older adults

Callari, Tiziana C.; Moody, Louise; Saunders, Janet; Ward, Gill; Woodley, Julie

Abstract

© The Author(s) 2019. Living Lab (LL) research should follow clear ethical guidelines and principles. While these exist in specific disciplinary contexts, there is a lack of tailored and specific ethical guidelines for the design, development, and implementation of LL projects. As well as the complexity of these dynamic and multi-faceted contexts, the engagement of older adults, and adults with reducing cognitive and physical capacity in LL research, poses additional ethical challenges. Semi-structured interviews were undertaken with 26 participants to understand multistakeholder experiences related to user engagement and related ethical issues in emerging LL research. The participants’ experiences and concerns are reported and translated into an ethical framework to guide future LL research initiatives.

• Journal Article Type: Article
• Acceptance Date: Aug 5, 2019
• Online Publication Date: Sep 18, 2019
• Publication Date: 2020-07
• Deposit Date: Sep 19, 2019
• Journal: Journal of Empirical Research on Human Research Ethics
• Print ISSN: 1556-2646
• Electronic ISSN: 1556-2654
• Publisher: SAGE Publications (UK and US)
• Peer Reviewed: Peer Reviewed
• Volume: 15
• Issue: 3
• Article Number: September 2019
• Pages: 111-127
• Series Title: Public responsibility in Medicine and research
• DOI: https://doi.org/10.1177/1556264619873790
• Keywords: Living Lab, research ethics, older adults, adults with dementia, qualitative content analysis, requirement elicitation
• Public URL: https://uwe-repository.worktribe.com/output/3118054
• Publisher URL: https://journals.sagepub.com/