How do people in prison access palliative care? A scoping review of models of palliative care delivery for prisoners in high-income countries

Gilbert, Emma; de Viggiani, Nick; de Sousa Martins, Joana; Palit, Tanuka; Sears, Jess; Knights, Daniel; Roulston, Audrey; Turner, Mary; Selman, Lucy

Abstract

Background: An ageing prison population with complex health needs combined with punitive sentencing practices means palliative care for incarcerated individuals is increasingly important. However, there is limited evidence regarding the models of care delivery in high-income countries, and their associated challenges and benefits.
Aim: To develop a typology of models of palliative care provision for incarcerated individuals, synthesise evidence of their outcomes, and describe facilitators of and challenges in delivering different models of palliative and end-of-life care in prisons.
Design: Scoping review following Arksey and O’Malley, with narrative synthesis. The protocol was registered prospectively (reviewregistry1260).
Data sources: MEDLINE, EMBASE, CINAHL, PsycINFO, the Social Sciences Citation Index and grey literature were searched on 15th March 2023. The Mixed Methods Appraisal Tool (MMAT) was used for quality appraisal.
Results: 16,865 records were screened; 22 peer-reviewed articles and 18 grey literature sources met the inclusion criteria. Three models were identified: Embedded Hospice, Outsourcing Care, and Community Collaboration. The Embedded Hospice model shows potential benefits for patients and prisons. Outsourcing Care may miss opportunities for comprehensive care. Collaborative Care relies on proactive prison community relationships that could be formalised for improvement. Psychosocial and bereavement needs of those dying in prison and their caregivers lack sufficient documentation.
Conclusion: Further research is needed to evaluate prison hospice costs and examine how prison hospices impact compassionate release usage. Beyond the USA, policies might formalise care pathways and recognise best practices. Further investigation to address psychosocial needs of prisoners with life-limiting illnesses and post-death bereavement support is required.

• Journal Article Type: Article
• Acceptance Date: Mar 9, 2024
• Online Publication Date: Apr 16, 2024
• Publication Date: May 1, 2024
• Deposit Date: Mar 12, 2024
• Publicly Available Date: Oct 3, 2024
• Journal: Palliative Medicine Journal
• Print ISSN: 0269-2163
• Publisher: SAGE Publications
• Peer Reviewed: Peer Reviewed
• Volume: 38
• Issue: 5
• Pages: 517-534
• DOI: https://doi.org/10.1177/02692163241242647
• Public URL: https://uwe-repository.worktribe.com/output/11793803
• Publisher URL: https://journals.sagepub.com/home/pmj/