Outputs (85)

Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory (2021)
Journal Article

Purpose: Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS) are heritable connective tissue disorders associated with joint instability and pain, but with scant guidance for supporting patients. The aim was to determ... Read More about Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory.

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Understandings and experiences of visible difference and romantic relationships: A qualitative exploration (2018)
Journal Article

© 2018 Elsevier Ltd The association between disfigurement (‘visible difference’) and romantic relationships has received relatively little consideration in the research literature. This qualitative research, conducted in the United Kingdom, explored... Read More about Understandings and experiences of visible difference and romantic relationships: A qualitative exploration.

The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study (2018)
Presentation / Conference Contribution

Background: Existing research examining those with Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (Hypermobility Type) (EDS-HT) has predominately focused on factors such as pain, range of movement and physical function. However psychos... Read More about The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study.

Development and initial validation of the CAR romantic relationships and intimacy scale (2018)
Presentation / Conference Contribution

Whilst participants with a disfiguring or appearance altering condition have expressed distress, fear, and anxiety in relation to their capacity to engage in physical intimacy and romantic relationships, there exists no measure of the perceived impac... Read More about Development and initial validation of the CAR romantic relationships and intimacy scale.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study (2018)
Journal Article

© 2018 Article author(s) (or their employer(s) unless otherwise stated in the text of the article). All rights reserved. Objective Valid measures of appearance concern are needed in systemic sclerosis (SSc), a rare, disfiguring autoimmune disease. Th... Read More about Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating not applicable' responses as missing data: A Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

A systematic review of the traits and cognitions associated with use of and belief in complementary and alternative medicine (CAM) (2018)
Journal Article

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Complementary and alternative medicine (CAM) use is widespread despite the controversy over its effectiveness. Although previous reviews have examined the demographics and attitu... Read More about A systematic review of the traits and cognitions associated with use of and belief in complementary and alternative medicine (CAM).

Toward a conceptual and methodological shift in craniofacial research (2017)
Journal Article

© The Author(s) 2017. Objective: To date, research investigating the psychological impact of craniofacial conditions has produced variability across outcomes. The aims of this article were to summarize the challenges that may contribute to this varia... Read More about Toward a conceptual and methodological shift in craniofacial research.

Being looked at and exposing yourself: Appearance altering conditions and stigma (2017)
Presentation / Conference Contribution

Accepted conference proceedings from the BPS DHP Annual Conference, 2017: Cardiff.

The impact of treatment for head and neck cancer on positive psychological change within a year of completing treatment (2017)
Journal Article

© 2017 International Association of Oral and Maxillofacial Surgeons Head and neck cancer carries a high level of morbidity and mortality. So why could anyone find having such a disease a positive event? The adversity hypothesis of “what doesn't kill... Read More about The impact of treatment for head and neck cancer on positive psychological change within a year of completing treatment.