Outputs (35)

Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases (2025)
Journal Article

Objectives To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment. Methods We conducted a secondary inductive thematic analysis of the ‘Steroid PRO’ semi-structured interviews with patients with r... Read More about Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases.

Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German (2025)
Journal Article

Objective
Patient education is a cornerstone of rheumatology care, enabling patients to effectively and safely manage their condition. Standardized patient knowledge assessments are essential for benchmarking care quality and tailoring education to... Read More about Development and validation of a patient knowledge questionnaire for rheumatoid arthritis (PKQ-RA-11) in Danish and German.

Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study (2025)
Journal Article

Purpose: To compare treatment utilisation for osteoarthritis (OA) and satisfaction with OA management between individuals with and without comorbid metabolic conditions (e.g., diabetes, obesity, dyslipidaemia, hypertension). Methods: Secondary analys... Read More about Treatment utilisation and satisfaction with management in individuals with osteoarthritis and metabolic multimorbidity: A cross‐sectional multi‐country study.

Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review (2024)
Journal Article

Introduction
The use of Janus kinase inhibitors (JAKis) in immune-mediated inflammatory diseases (IMIDs) beyond licence is expanding rapidly. The aim of this scoping review was to identify and present the available evidence on the efficacy of JAKis... Read More about Janus-kinase inhibitor use in immune-mediated inflammatory diseases beyond licensed indications: A scoping review.

What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol (2024)
Journal Article

Background: Fibromyalgia Syndrome (FMS) is characterised by widespread and persistent pain, intrusive fatigue and cognitive issues, affecting approximately 5.4% of the UK population. Non‐pharmacological therapies and education are current management... Read More about What factors are associated with patients being active partners in the management fibromyalgia? A mixed methods systematic review protocol.

Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia (2024)
Journal Article

Background: This study aimed to explore the awareness, experiences, and beliefs of individuals with osteoarthritis (OA) regarding their healthcare management, along with assessing their overall satisfaction levels.

Methods: A cross-sectional onli... Read More about Geographical differences in the perspective of osteoarthritis care management: A cross-sectional study in Italy, Sweden and Russia.

AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study (2024)
Presentation / Conference Contribution

Background: Glucocorticoids (GCs) play a pivotal role in the management of inflammatory rheumatic conditions but they can adversely impact on patients in different ways. Conversely, there are certain patient charact... Read More about AB1429 Sociodemographic and clinical factors associated with health-related quality of life in patients with inflammatory rheumatic diseases treated with glucocorticoids: A cross-sectional study.

POS1477-HPR Understanding treatment utilisation in individuals with osteoarthritis and metabolic multimorbidity: A cross-sectional study (2024)
Presentation / Conference Contribution

Background: Osteoarthritis (OA) and metabolic conditions are major causes of disability. A growing hypothesis posits the presence of a metabolic OA phenotype where the co-occurrence of OA and metabolic conditions may worsen joint symptoms and overall... Read More about POS1477-HPR Understanding treatment utilisation in individuals with osteoarthritis and metabolic multimorbidity: A cross-sectional study.

AB1575-HPR Geographical differences in osteoarthritis care management: A European cross-sectional study (2024)
Presentation / Conference Contribution

Background: Osteoarthritis (OA) burdens individuals and healthcare systems across Europe. With limited curative options, symptom management becomes pivotal, yet underdiagnosis and varied healthcare professional education in OA prevail. The role of in... Read More about AB1575-HPR Geographical differences in osteoarthritis care management: A European cross-sectional study.

P186 Impact of glucocorticoids on appearance and sense of self in rheumatic diseases (2024)
Presentation / Conference Contribution

Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial (2024)
Journal Article

Objectives To evaluate the effectiveness of a novel digital patient education (PE) programme in improving self-management in patients newly diagnosed with rheumatoid arthritis (RA). Methods This was a parallel, open-label, two arms, randomised contro... Read More about Effectiveness of a novel digital patient education programme to support self-management of early rheumatoid arthritis: A randomised controlled trial.

Beyond aches and pain: The hidden economic burden of musculoskeletal conditions in children and adolescents (2024)
Journal Article

Commentary on: Espirito Santo, C. M. et al. Overview of the economic burden of musculoskeletal pain in children and adolescents: a systematic review with meta-analysis. Pain 165, 296-323 (2024). https://doi.org:10.1097/j.pain.0000000000003037

Personalised care packages for people with rheumatoid arthritis: a mixed-methods study. (2024)
Journal Article

Disease management in rheumatoid arthritis (RA) requires holistic assessment. We aimed to design personalised care packages suitable for people with RA. This study was conducted using a mixed-methods approach and exploratory sequential design. Consen... Read More about Personalised care packages for people with rheumatoid arthritis: a mixed-methods study..

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review (2023)
Journal Article

Background: Chronic pain services in the UK are required to provide services which meet the diverse needs of patients, but little is known about the access and use of these services by minority ethnic groups. Objective: To assess the available eviden... Read More about Access to chronic pain services for adults from minority ethnic groups in the United Kingdom (UK): A scoping review.

Diagnosing and treating rheumatic and musculoskeletal diseases in low resource settings: A review of the challenges and opportunities in Tanzania (2023)
Journal Article

EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis (2023)
Journal Article

Objective: To develop evidence-based recommendations for the non-pharmacological management of systemic lupus erythematosus (SLE) and systemic sclerosis (SSc). Methods: A task force comprising 7 rheumatologists, 15 other healthcare professionals and... Read More about EULAR recommendations for the non-pharmacological management of systemic lupus erythematosus and systemic sclerosis.

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Presentation / Conference Contribution

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake (2022)
Journal Article

A clinical guideline is a document with the aim of guiding decisions based on evidence regarding diagnosis, management and treatment in specific areas of healthcare. Specific to rheumatic and musculoskeletal diseases (RMDs), adherence to clinical gui... Read More about Implementation of recommendations in rheumatic and musculoskeletal diseases: Considerations for development and uptake.