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Outputs (163)

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.

The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study (2009)
Journal Article

Objective: To explore rheumatoid arthritis (RA) patients' experience of access to antitumour necrosis factor (anti-TNF) therapy in the UK, and of switching therapies after an initial failure. Methods: Patients were asked about their experience of acc... Read More about The impact of patient-perceived restricted access to anti-TNF therapy for rheumatoid arthritis: A qualitative study.

Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management (2009)
Journal Article

Title: Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management. Aim: This paper is a report of a study conducted to compare the knowledge, attitudes and current management of rheumatoid arthritis-r... Read More about Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management.

Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group) (2009)
Presentation / Conference Contribution

Objective. Traditional outcome measures in randomized controlled trials (RCT) include well-established response criteria as well as ACR EULAR responses using Disease Activity Score 44 (DAS44)/DAS28 to assess improvement; however, a measure to assess... Read More about Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 special interest group).

Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9 (2009)
Presentation / Conference Contribution

The Patient Perspective Workshop included over 100 researchers and 18 patient participants from 8 countries. Following preconference reading and short plenary presentations, breakout groups considered work undertaken on measurement of sleep, assessin... Read More about Progress on incorporating the patient perspective in outcome assessment in rheumatology and the emergence of life impact measures at OMERACT 9.