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Outputs (163)

Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages (2016)
Journal Article

© The Author 2016. Objective. Cross-cultural translation of patient-reported outcome measures (PROMs) is a lengthy process, often performed professionally. Cognitive interviewing assesses patient comprehension of PROMs. The objective was to evaluate... Read More about Translating patient reported outcome measures: Methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures (2016)
Journal Article

© 2015, Springer International Publishing Switzerland. Background: The assessment of rheumatoid arthritis (RA) is dominated by core sets and indices that have been developed by RA professionals. Previous research developed a set of eight priority tre... Read More about Item Development and Face Validity of the Rheumatoid Arthritis Patient Priorities in Pharmacological Interventions Outcome Measures.

A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations (2016)
Journal Article

© 2016 Dures et al. Background: Self-management of inflammatory arthritis (IA) requires patients to address the impact of symptoms, treatment, and the psychosocial consequences of a long term condition. There are several possible mechanisms for facil... Read More about A qualitative study of patients' perspectives on collaboration to support self-management in routine rheumatology consultations.

A survey of psychological support provision for people with inflammatory arthritis in secondary care in England (2016)
Journal Article

© 2014 The Authors. Objectives: The consequences of inflammatory arthritis can include depression, anxiety and low mood, reducing patients' quality of life and increasing pressure on the healthcare system. Treatment guidelines recommend psychological... Read More about A survey of psychological support provision for people with inflammatory arthritis in secondary care in England.

Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12 (2016)
Journal Article

The Journal of Rheumatology Copyright © 2016. All rights reserved. Objective. The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health... Read More about Remission in rheumatoid arthritis: Working toward incorporation of the patient perspective at OMERACT 12.

Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary (2015)
Journal Article

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. The Outcome Measures in Rheumatology (OMERACT) Rheumatoid Arthritis (RA) Flare Group was established to develop an approach to identify and measure RA flares. An overview o... Read More about Feasibility and domain validation of rheumatoid arthritis (RA) flare core domain set: Report of the OMERACT 2014 RA Flare Group plenary.

The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission (2015)
Presentation / Conference Contribution

Background: Guidelines suggest treatment in rheumatoid arthritis (RA) should be targeted at remission, in close consultation with the patient. Our recent qualitative study of the patient perspective on remission in RA identified reduction or absence... Read More about The patient perspective on absence of disease activity in rheumatoid arthritis: A survey to identify key domains of patient perceived remission.

“Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study (2015)
Presentation / Conference Contribution

Background: Research on coping with RA reflects the preponderance of women with the condition (70%). In other long term conditions research suggests men need their own health strategy.

Objectives: To explore the experiences and coping styles of me... Read More about “Men don’t cry”: The experiences and coping styles of men with RA: A Q-methodology study.

The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again' (2015)
Journal Article

© 2015, BMJ Publishing Group. All rights reserved. Objectives: The aim of rheumatoid arthritis (RA) treatment is remission. As treatment should be targeted at outcomes relevant to patients, it is important to understand how patients perceive remissio... Read More about The patient perspective on remission in rheumatoid arthritis: 'You've got limits, but you're back to being you again'.

More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions (2015)
Journal Article

The Journal of Rheumatology Copyright © 2015. All rights reserved. Objective. Stiffness was endorsed within the rheumatoid arthritis (RA) flare core domain set at the previous Outcome Measures in Rheumatology meeting (OMERACT 11). Two stiffness break... Read More about More than just minutes of stiffness in the morning: Report from the OMERACT rheumatoid arthritis flare group stiffness breakout sessions.

Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches (2015)
Journal Article

Introduction: Rheumatoid arthritis (RA) fatigue is distressing, leading to unmanageable physical and cognitive exhaustion impacting on health, leisure and work. Group cognitive-behavioural (CB) therapy delivered by a clinical psychologist demonstrate... Read More about Protocol for a randomised controlled trial for Reducing Arthritis Fatigue by clinical Teams (RAFT) using cognitive-behavioural approaches.

Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis (2014)
Journal Article

© The Author 2014. Objective. Stiffness is internationally recognized as an important indicator of inflammatory activity in RA but is poorly understood and difficult to measure. The aim of this study was to explore the experience of stiffness from th... Read More about Stiffness is more than just duration and severity: A qualitative exploration in people with rheumatoid arthritis.

A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis (2014)
Journal Article

© 2014 Lin et al.; licensee BioMed Central Ltd. Background: Previous studies have not addressed rheumatoid arthritis (RA) patients' help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience dail... Read More about A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis.

The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions (2014)
Journal Article

Background: Fatigue is a major symptom of RA and the need for effective interventions is evident. Programmes based upon physical activity (PA) have been shown to improve patient reported fatigue in other long term conditions (LTCs). To inform the dev... Read More about The potential use of physical activity to help manage fatigue in rheumatoid arthritis: Lessons from other long-term conditions.