Outputs (71)

Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery (2024)
Journal Article

Little is known about the ideal service delivery model and shortcomings in patient experiences in the NHS for patients with Psoriatic Arthritis (PsA). To identify unmet needs perceived within the current health service delivery model for PsA from the... Read More about Psoriatic arthritis priority setting partnership: Patient and clinician informed considerations for future UK health service delivery.

Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops (2024)
Journal Article

Purpose: Patient experiences of brachytherapy for locally advanced cervical cancer (LACC) are widely variable, with reports of difficult and traumatic experiences and aspects of care requiring improvement. The aim of this study was to develop patient... Read More about Development and refinement of patient care recommendations in brachytherapy for locally advanced cervical cancer using nominal group technique workshops.

Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol. (2024)
Journal Article

Fatigue is an important and distressing symptom for many people living with chronic musculoskeletal (MSK) conditions. Many non-pharmacological interventions have been investigated in recent years and some have been demonstrated to be effective in red... Read More about Factors influencing the outcomes of non-pharmacological interventions for managing fatigue across the lifespan of people living with musculoskeletal (MSK) conditions: a scoping review protocol..

Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population (2024)
Journal Article

Background
The Chalder Fatigue Scale, also known as the Chalder Fatigue Questionnaire (CFQ) is a Patient Reported Outcome Measure (PROM) comprising 11 items designed to measure physical and cognitive fatigue. It is widely used with people with myalg... Read More about Exploring the content validity of the Chalder Fatigue Scale using cognitive interviewing in an ME/CFS population.

Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews (2023)
Journal Article

Purpose: Brachytherapy for gynecological cancer is reported to cause pain, anxiety, and distress with no clear guidance for optimizing patient experiences. The aim of this study was to explore patient experiences of brachytherapy and views on improve... Read More about Patient experiences of brachytherapy for locally advanced cervical cancer: Hearing the patient voice through qualitative interviews.

Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol (2023)
Journal Article

Introduction Fatigue is the most prevalent symptom for patients with a primary brain tumour (PBT), significantly reducing quality of life and limiting daily activities. Currently, there are limited options for managing cancer-related fatigue (CRF) in... Read More about Non-pharmacological fatigue interventions for patients with a primary brain tumour: A scoping review protocol.

2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases (2023)
Journal Article

Objectives Fatigue is prevalent in people with inflammatory rheumatic and musculoskeletal diseases (I-RMDs) and recognised as one of the most challenging symptoms to manage. The existence of multiple factors associated with driving and maintaining fa... Read More about 2023 EULAR recommendations for the management of fatigue in people with inflammatory rheumatic and musculoskeletal diseases.

Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO) (2023)
Journal Article

Objectives: Glucocorticoids used in the treatment of inflammatory rheumatic conditions can impact on health-related quality of life. An underpinning qualitative study developed a long-list of candidate items for a treatment-specific patient-reported... Read More about Validation of a new glucocorticoid-specific Patient-Reported Outcome Questionnaire (the Steroid PRO).

Validation of a patient-reported outcome measure for giant cell arteritis (2023)
Journal Article

OBJECTIVES: GCA is systemic vasculitis manifesting as cranial, ocular or large vessel vasculitis. A prior qualitative study developed 40 candidate items to assess the impact of GCA on health-related quality of life (HRQoL). This study aimed to determ... Read More about Validation of a patient-reported outcome measure for giant cell arteritis.

E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models (2023)
Presentation / Conference Contribution

Background/Aims Systemic glucocorticoids are key in the management of life- and organ-threatening rheumatic diseases, but have wide-ranging adverse effects of concern to patients and clinicians. We aimed to validate a Patient Reported Outcome (PRO) m... Read More about E038 A common measure of the impact of glucocorticoids in patients with inflammatory and autoimmune conditions - The Steroid PRO: A cross-cultural validation study with Rasch models.

Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases (2023)
Journal Article

OBJECTIVES: To estimate the cost-effectiveness of a cognitive behavioural approach (CBA) or a personalized exercise programme (PEP), alongside usual care (UC), in patients with inflammatory rheumatic diseases who report chronic, moderate to severe fa... Read More about Cost-effectiveness of cognitive behavioural and personalized exercise interventions for reducing fatigue in inflammatory rheumatic diseases.

Robotics technology for pain treatment and management: A review (2023)
Presentation / Conference Contribution

The use of robots for pain management is a new and active research field. The aim of this scoping review is to identify current research, which groups or conditions are being targeted for treatment, which devices are being used, and how effective the... Read More about Robotics technology for pain treatment and management: A review.

Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial (2023)
Journal Article

Introduction: Chronic musculoskeletal (bone, joint or muscle) pain is disabling. People with it frequently have difficulties in managing everyday activities. Individuals may rely on family members or friends to support them. These people are known as... Read More about Informal caregiver training for people with chronic pain in musculoskeletal services (JOINT SUPPORT): Protocol for a feasibility randomised controlled trial.

Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study (2023)
Journal Article

Background: Patients with inflammatory rheumatic diseases (IRDs) face challenges including pain, fatigue and disease flares. Evidence suggests their levels of anxiety and depression are higher compared to the general population. Rheumatology teams re... Read More about Health professionals' perspectives on psychological distress and meeting patients' support needs in rheumatology care settings: A qualitative study.

Caregiving for older people living with chronic pain: Analysis of the English longitudinal study of ageing and health survey for England (2022)
Journal Article

Background: Chronic pain is a disabling condition. Many people with chronic pain seek informal support for everyday activities of daily living (ADL). However, there remains uncertainty on the type of people with chronic pain who access this support,... Read More about Caregiving for older people living with chronic pain: Analysis of the English longitudinal study of ageing and health survey for England.

Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation (2022)
Journal Article

Objective: Fatigue is a challenging feature of all inflammatory rheumatic diseases. LIFT (Lessening the Impact of Fatigue in inflammatory rheumatic diseases: a randomized Trial) included remotely delivered personalized exercise programme (PEP) or cog... Read More about Therapists’ experiences of remotely delivering cognitive-behavioural or graded-exercise interventions for fatigue: A qualitative evaluation.

A qualitative study of patients’ experiences of screening for psoriatic arthritis (2022)
Journal Article

Psoriatic arthritis (PsA) is a chronic inflammatory arthritis which can cause pain, fatigue, swelling and stiffness in the joints, and result in limited physical function and a high psychosocial burden.
Patients with psoriasis are at greater risk... Read More about A qualitative study of patients’ experiences of screening for psoriatic arthritis.

Acceptability of a brief fatigue intervention for inflammatory arthritis: A qualitative process evaluation (2022)
Journal Article

Objectives: We developed a brief cognitive behavioural, one-to-one intervention to reduce fatigue impact for patients with inflammatory arthritis. This qualitative process evaluation explored intervention acceptability and potential refinements from... Read More about Acceptability of a brief fatigue intervention for inflammatory arthritis: A qualitative process evaluation.

Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study (2022)
Journal Article

OBJECTIVES: Patients with inflammatory arthritis report that fatigue is challenging to manage. We developed a manualised, one-to-one, cognitive-behavioural intervention, delivered by rheumatology health professionals (RHPs). The Fatigue - Reducing it... Read More about Brief intervention to reduce fatigue impact in patients with inflammatory arthritis: Design and outcomes of a single-arm feasibility study.

Remotely delivered cognitive behavioural and personalised exercise interventions for fatigue severity and impact in inflammatory rheumatic diseases (LIFT): a multicentre, randomised, controlled, open-label, parallel-group trial (2022)
Journal Article

Background: Chronic fatigue is a poorly managed problem in people with inflammatory rheumatic diseases. Cognitive behavioural approaches (CBA) and personalised exercise programmes (PEP) can be effective, but they are not often implemented because the... Read More about Remotely delivered cognitive behavioural and personalised exercise interventions for fatigue severity and impact in inflammatory rheumatic diseases (LIFT): a multicentre, randomised, controlled, open-label, parallel-group trial.