Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.
Outputs (10)
Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article
Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.
“They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction (2021)
Journal Article
Objective: Many women choose to have breast reconstruction after mastectomy, however, decision-making can be difficult and expectations are often unmet. The PEGASUS intervention (Patient Expectations and Goals: Assisting Shared Understanding of Surge... Read More about “They were aware of who I was as a person”: Patients’ and health professionals’ experiences of using the PEGASUS intervention to facilitate decision-making around breast reconstruction.
Oncoplastic breast surgery: A guide to good practice (2021)
Journal Article
Oncoplastic Breast Surgery has become standard of care in the management of Breast. Cancer Patents. These guidelines written by an Expert Advisory Group; convened by the Association of Breast Surgery (ABS) and the British Association of Plastic, Reco... Read More about Oncoplastic breast surgery: A guide to good practice.
"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article
Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.
Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article
Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.
The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article
Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.
‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss (2021)
Journal Article
The psychological and social impact of hair loss and its ongoing treatment can be considerable. Medical treatments are not always successful, and alternative treatments, such as medical tattooing, are growing in popularity. The aims of this study wer... Read More about ‘My face in someone else’s hands’: A qualitative study of medical tattooing in women with hair loss.
A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers (2021)
Journal Article
Urinary tract infections (UTIs) can be life threatening in older adults. The aim of this study was to primarily understand the acceptability and feasibility of using a UTI leaflet for older adults in care homes and the community. Qualitative intervie... Read More about A qualitative investigation of the acceptability and feasibility of a urinary tract infection patient information leaflet for older adults and their carers.
The nature and importance of women's goals for immediate and delayed breast reconstruction (2021)
Journal Article
Objectives: Increasingly, women undergo breast reconstruction (BR) surgery to restore health-related and psychosocial quality of life after mastectomy. Most research focuses on BR outcomes rather than women's pre-surgical expectations of, and goals f... Read More about The nature and importance of women's goals for immediate and delayed breast reconstruction.