Outputs (5)

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

Physical appearance and well-being in adults with incurable cancer: A thematic analysis (2020)
Journal Article

Objectives: Existing research has established the importance of appearance concerns for individuals with cancer and identified appearance as an important factor in dying with dignity. No research, however, has explored in depth the role of appearance... Read More about Physical appearance and well-being in adults with incurable cancer: A thematic analysis.

The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis (2019)
Journal Article

Objective This qualitative evidence synthesis aimed to identify, review and synthesise qualitative research describing the experience of persistent pain in adult cancer survivors. Methods A systematic literature search was conducted between Dec... Read More about The experience of persistent pain in adult cancer survivors: A qualitative evidence synthesis.

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.