Patients and professionals as research partners: Challenges, practicalities, and benefits
(2006)
Journal Article
All Outputs (133)
Current provision of rheumatology education for undergraduate nursing, occupational therapy and physiotherapy students in the UK (2006)
Journal Article
Objectives. Rheumatological conditions are common and all health professionals (HPs) therefore need sufficient knowledge and skills to manage patients safely and effectively. The aim of this study was to examine current undergraduate education in rhe... Read More about Current provision of rheumatology education for undergraduate nursing, occupational therapy and physiotherapy students in the UK.
Rheumatology telephone helplines: patient and health professionals' requirements. (2006)
Journal Article
OBJECTIVES: The aim of this study was to ascertain patients' and health professionals' requirements from a rheumatology helpline and how such a service should be delivered. METHODS: Self-completed questionnaires were administered to both users of rhe... Read More about Rheumatology telephone helplines: patient and health professionals' requirements..
Personal impact of disability in osteoarthritis: patient, professional and public values. (2006)
Journal Article
BACKGROUND: Osteoarthritis (OA) is a leading cause of disability. Numerous tools are available to assess this, but they fail to place a patient value upon disability. In rheumatoid arthritis, research has shown patients have different importance valu... Read More about Personal impact of disability in osteoarthritis: patient, professional and public values..
Implementing a patient-led service for chronic conditions (2005)
Journal Article
Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment (2005)
Journal Article
The first OMERACT Patient Perspective Workshop took place at OMERACT 6 in 2002. Through a series of meetings and discussion sessions a research agenda emerged and this report outlines progress made on this agenda. Work on identifying novel outcomes,... Read More about Progress since OMERACT 6 on including the patient perspective in rheumatoid arthritis outcome assessment.
Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7 (2005)
Journal Article
The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on... Read More about Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: Progress at OMERACT 7.
Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored (2005)
Journal Article
Objective. Fatigue is commonly reported by patients with rheumatoid arthritis (RA) but is rarely a treatment target. The aim of this study was to explore the concept of fatigue as experienced by patients with RA. Methods. Fifteen patients with RA and... Read More about Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored.
Outcomes generated by patients with rheumatoid arthritis: How important are they? (2005)
Journal Article
Background: It has been shown previously that patients with rheumatoid arthritis (RA) can generate a wide range of outcomes that they consider important in treatment. It is not known if these outcomes are generally important in the wider RA patient c... Read More about Outcomes generated by patients with rheumatoid arthritis: How important are they?.
Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis (2005)
Journal Article
Objective: Evidence that patient education improves outcome in self-selected patients is often based on studies using patients with a mixture of diagnoses (primarily osteoarthritis) and where the education is delivered in a community setting. This st... Read More about Clinical and psychological outcomes in a randomised controlled clinical trial of patient education in rheumatoid arthritis.
Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial (2005)
Journal Article
Objectives: To determine whether direct access to hospital review initiated by patients with rheumatoid arthritis would result in improved clinical and psychological outcome, reduced overall use of healthcare resources, and greater satisfaction with... Read More about Patient initiated outpatient follow up in rheumatoid arthritis: Six year randomised controlled trial.
Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits (2004)
Journal Article
Objective. To quantify the set-up costs and monetary benefits of a welfare rights service integrated within an NHS service provider, that selects eligible patients using the Health Assessment Questionnaire (HAQ) and offers welfare rights advice to as... Read More about Welfare rights services for people disabled with arthritis integrated in primary care and hospital settings: Set-up costs and monetary benefits.
Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support (2004)
Journal Article
Objectives. To test, in a variety of health settings, the ability of the Health Assessment Questionnaire (HAQ) disability index to predict the eligibility of patients with moderate or severe arthritis for disability living allowance or attendance all... Read More about Using the health assessment questionnaire and welfare benefits advice to help people disabled through arthritis to access financial support.
Consent to research in arthritis: Quantity of information versus quality (2003)
Journal Article
Invited Editorial
Outcomes from the patient perspective workshop at OMERACT 6 (2003)
Journal Article
The objective of the Patient Perspective Workshop at OMERACT 6 was to address the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease themselves. This was done by re... Read More about Outcomes from the patient perspective workshop at OMERACT 6.
Rheumatology outcomes: The patient's perspective (2003)
Journal Article
Our aim was to explore the patient's perspective of outcomes in rheumatoid arthritis (RA) to identify which outcomes are important to patients and how patients calibrate what constitutes a meaningful change in those outcomes. A qualitative study was... Read More about Rheumatology outcomes: The patient's perspective.
Patients and clinicians have different perspectives on outcomes in arthritis (2003)
Journal Article
Outcome measurement in arthritis has undergone a major shift during the past 2 decades, moving from process measures (e.g., plasma viscosity) to patient-centered outcome measures (e.g., pain, function). However, while patients self-report many of the... Read More about Patients and clinicians have different perspectives on outcomes in arthritis.
Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years (2003)
Journal Article
Background. Patients with rheumatoid arthritis (RA) are traditionally seen regularly as out-patients, irrespective of whether it is appropriate or timely to see them. A randomized controlled trial has shown that over 2 yr, seeing patients only when t... Read More about Clinical and psychological outcome from a randomized controlled trial of patient-initiated direct-access hospital follow-up for rheumatoid arthritis extended to 4 years.
MCID/Low disease activity state workshop: Summary, recommendations and research agenda (2003)
Journal Article
The OMERACT 6 Minimal Clinically Important Difference/Low Disease Activity Workshop was organized with the aim of meeting the many challenges that exist in determining a low disease activity in rheumatoid arthritis (RA). This article presents an over... Read More about MCID/Low disease activity state workshop: Summary, recommendations and research agenda.
Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis (2002)
Journal Article
Background: Many eligible people with arthritis do not receive disability benefits. Application forms are lengthy and complex, and doctors and nurses are often unsure which patients would qualify. Aim: To investigate how severe disability on the... Read More about Prediction of succcessful application for disability benefits using the Health Assessment Questionnaire for people with arthritis.