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All Outputs (133)

"They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue (2012)
Journal Article

Objective. Fatigue is an overwhelming rheumatoid arthritis (RA) symptom caused by interacting clinical and psychosocial factors. Cognitive-behavioral therapy (CBT) addresses links between thoughts, feelings, and behaviors and uses cognitive restructu... Read More about "They didn't tell us, they made us work it out ourselves": Patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue.

'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought (2012)
Journal Article

Objective: People with RA have episodes of worsening disease activity (flares) that prompt them to seek clinical review or medication change. This study explored patients' perspectives of flare that prompts them to seek medication review. Methods: Fo... Read More about 'I'm hurting, I want to kill myself': Rheumatoid arthritis flare is more than a high joint count-an international patient perspective on flare where medical help is sought.

Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients (2012)
Journal Article

The nominal group technique generates quantitative data through a process of experts ranking items of interest. This article focuses on the additional collection of qualitative data from nominal groups with rheumatoid arthritis (RA) patients, used to... Read More about Utilizing qualitative data from nominal groups: Exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.

'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis (2011)
Journal Article

Objectives: To identify the information needs of patients newly diagnosed with systemic lupus erythematosus (lupus), to inform the design of a future education package. Methods: Focus groups were conducted in seven rheumatology centres in the UK with... Read More about 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis.

Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy (2011)
Journal Article

Objectives To investigate the effect of group cognitive behavioural therapy (CBT) for fatigue self-management, compared with groups receiving fatigue information alone, on fatigue impact among people with rheumatoid arthritis (RA). Methods Two-arm, p... Read More about Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.

Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis (2010)
Journal Article

Patient-reported outcome measures (PROMs) need to include concepts and language relevant to patients and be easily understood. These studies aimed to develop draft PROMs to measure rheumatoid arthritis (RA) fatigue and its impact by collaborating wit... Read More about Collaboration with patients in the design of patient reported outcome measures: Capturing the experience of fatigue in rheumatoid arthritis.

'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis (2010)
Journal Article

Objectives: The aim of this study was to explore the meaning of 'feeling wellg' for people with rheumatoid arthritis (RA). Methods: In-depth interviews were conducted with 23 RA patients, purposively sampled for medication type, disease duration, dis... Read More about 'It's this whole picture, this well-being': Patients' understanding of 'feeling well' with rheumatoid arthritis.

Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes (2010)
Journal Article

Objective. Collaboration with patients with rheumatoid arthritis (RA) highlights that outcomes important to them include fatigue, coping, and life enjoyment. However, these are not commonly measured in clinical trials. There is little evidence about... Read More about Patient perspective of measuring treatment efficacy: The rheumatoid arthritis patient priorities for pharmacologic interventions outcomes.

What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set (2010)
Journal Article

Objective. Function, patient global assessment, and pain are routinely measured in rheumatoid arthritis (RA) clinical trials. However, other patient-reported outcomes identified as important to patients in qualitative studies, such as fatigue and qua... Read More about What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set.

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis. (2010)
Journal Article

Aim: Measuring facts about disability may not reflect their personal impact. An individualized values instrument has been used to weight difficulty in performing activities of daily living in rheumatoid arthritis, and calculate personal impact (Pers... Read More about Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis..

Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis (2010)
Journal Article

Objectives: Research suggests that rheumatoid arthritis (RA) can have a negative psychosocial impact on partners, as well as patients. However, until now there has been very little in-depth qualitative research in this area. The aim of this study was... Read More about Your whole life, your whole world, it changes': Partners' experiences of living with rheumatoid arthritis.