All Outputs (7)

Improving patients’ experiences of diagnosis and treatment of vertebral fracture: Co-production of knowledge sharing resources (2024)
Journal Article

Background: Osteoporosis involves changes to bones that makes them prone to fracture. The most common osteoporotic fracture is vertebral, in which one or more spinal vertebrae collapse. People with vertebral fracture are at high risk of further fract... Read More about Improving patients’ experiences of diagnosis and treatment of vertebral fracture: Co-production of knowledge sharing resources.

Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory (2021)
Journal Article

Purpose: Hypermobility Spectrum Disorders (HSD) and Hypermobile Ehlers-Danlos Syndrome (hEDS) are heritable connective tissue disorders associated with joint instability and pain, but with scant guidance for supporting patients. The aim was to determ... Read More about Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): An analysis informed by behaviour change theory.

Understanding the psychosocial impact of Joint Hypermobility and Ehlers-Danlos Syndrome (2020)
Thesis

Abstract

Introduction: Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome Hypermobility Type (EDS-HT) are heritable disorders affecting connective tissue. Existing research has predominately focused on biological features such as joint... Read More about Understanding the psychosocial impact of Joint Hypermobility and Ehlers-Danlos Syndrome.

Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study (2019)
Journal Article

Purpose: Little attention has been paid to psychosocial factors in Joint Hypermobility Syndrome and Ehlers–Danlos Syndrome (hypermobility type). This study sought to identify the psychosocial impact by examining participants’ lived experiences; and i... Read More about Understanding the psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome Hypermobility Type: A qualitative interview study.

The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis (2019)
Journal Article

© 2019, © 2019 Informa UK Limited, trading as Taylor & Francis Group. Background: Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (EDS) are heritable connective tissue disorders characterised by joint instability, pain, anxiety, depre... Read More about The lived experience of Joint Hypermobility and Ehlers-Danlos Syndromes: a systematic review and thematic synthesis.

The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study (2018)
Presentation / Conference Contribution

Background: Existing research examining those with Joint Hypermobility Syndrome (JHS) and Ehlers-Danlos Syndrome (Hypermobility Type) (EDS-HT) has predominately focused on factors such as pain, range of movement and physical function. However psychos... Read More about The psychosocial impact of Joint Hypermobility Syndrome and Ehlers-Danlos Syndrome (Hypermobility Type): A qualitative interview study.

OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe
Presentation / Conference Contribution

Background: EULAR recommendations for patient education for people with inflammatory arthritis (IA) were published in 2015.1 This is the first systematic dissemination and implementation study, reporting qualitative data identifying barriers to imple... Read More about OP0157-HPR Dissemination and assessing implementation of the EULAR recommendations for patient education for people with inflammatory arthritis across Europe.