The impact of urinary incontinence on health-related quality of life (HRQoL) in a real-world population of women aged 45-60 years: Results from a survey in France, Germany, the UK and the USA

Abrams, Paul; Smith, Andrew P.; Cotterill, Nikki

doi:10.1111/bju.12852

Participant’s experiences of taking melatonin for the treatment of nocturia in MS: Qualitative findings from a double blind RCT (2017)
Presentation / Conference Contribution

Multiple Sclerosis (MS) is a chronic neurological disorder caused by eventual neurodegeneration within the central nervous system resulting in impaired physical, cognitive and psychological functioning. It is often progressive and can result in many... Read More about Participant’s experiences of taking melatonin for the treatment of nocturia in MS: Qualitative findings from a double blind RCT.

Neurogenic bowel dysfunction: Clinical management recommendations of the Neurologic Incontinence Committee of the Fifth International Consultation on Incontinence 2013 (2017)
Journal Article

© 2017 Wiley Periodicals, Inc. Background: Evidence-based guidelines for the management of neurological disease and lower bowel dysfunction have been produced by the International Consultations on Incontinence (ICI). These are comprehensive guideline... Read More about Neurogenic bowel dysfunction: Clinical management recommendations of the Neurologic Incontinence Committee of the Fifth International Consultation on Incontinence 2013.

Patient-reported outcome assessment (2017)
Book Chapter

Tri-ennial review of the literature related to patient-reported outcome assessment.

Adapting the QuinteT Recruitment Intervention (QRI) to optimise recruitment in an ongoing randomised controlled trial (2017)
Presentation / Conference Contribution

Randomised Controlled Trials (RCTs) are the most rigorous study design to evaluate healthcare interventions. However, their success relies on patient recruitment. The QuinteT Recruitment Intervention (QRI) aims to address recruitment difficulties an... Read More about Adapting the QuinteT Recruitment Intervention (QRI) to optimise recruitment in an ongoing randomised controlled trial.

A randomised controlled trial to determine the clinical and cost effectiveness of thulium laser transurethral vaporesection of the prostate (ThuVARP) versus transurethral resection of the prostate (TURP) in the National Health Service (NHS) - the UNBLOCS trial: A study protocol for a randomised controlled trial (2017)
Journal Article

© 2017 The Author(s). Background: Transurethral resection of the prostate (TURP) has been the standard operation for benign prostatic obstruction (BPO) for 40 years, with approximately 25,000 procedures performed annually, and has remained largely un... Read More about A randomised controlled trial to determine the clinical and cost effectiveness of thulium laser transurethral vaporesection of the prostate (ThuVARP) versus transurethral resection of the prostate (TURP) in the National Health Service (NHS) - the UNBLOCS trial: A study protocol for a randomised controlled trial.

Qualitative Exploration of the Patient Experience of Underactive Bladder (2017)
Journal Article

© 2017 European Association of Urology Background Underactive bladder (UAB) is considered the symptom complex associated with the urodynamic diagnosis of detrusor underactivity. Objective The aim of this research was to investigate the patient report... Read More about Qualitative Exploration of the Patient Experience of Underactive Bladder.

Can a patient reported outcome be adequate without assessing quality of life in lower urinary tract dysfunction? (2017)
Journal Article

© 2017 Wiley Periodicals, Inc. AIMS AND METHODS: A think tank was convened at the sixth ICI-RS meeting held in the United Kingdom on September 2015, to consider the adequacy of patient reported outcome (PRO) measurement if quality of life (QoL) evalu... Read More about Can a patient reported outcome be adequate without assessing quality of life in lower urinary tract dysfunction?.

Consultant outcome publication: Surgeons' opinions of a new mandatory health policy (2017)
Presentation / Conference Contribution

Consultant Outcome Publication (COP) regarding outcomes of operations done by individual surgeons was introduced to UK Urology in 2012 with the first publication of the Nephrectomy Outcomes Database. COP was championed as a policy to increase transpa... Read More about Consultant outcome publication: Surgeons' opinions of a new mandatory health policy.

International consultation on incontinence modular questionnaire (2016)
Book Chapter

A summary of the International Consultation on Incontinence Modular Questionnaire and its use in female urology and urogynaecology.

Bladder diary and symptom scores (2016)
Book Chapter

A summary of the use of bladder diaries and symptom scores for the evaluation of lower urinary tract symptoms.

Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients (2016)
Journal Article

© MA Healthcare Ltd. Patients' self-reported constipation symptoms, preferred terminology and quality of life (QoL) issues were explored through 14 semi-structured and five unstructured interviews. In a modified Delphi study, 11 clinicians rated the... Read More about Validated constipation symptom and quality-of-life measures neither reflect patient and clinician concerns nor use words familiar to patients.

Cross-sectional prevalence study of urinary and/or anal incontinence and its impact on quality of life in a cohort of individuals with progressive multiple sclerosis (2016)
Presentation / Conference Contribution

Bladder and bowel problems are commonly reported among individuals with Multiple Sclerosis (MS). Urinary incontinence (UI) affects between 19 and 80% of individuals with MS dependent on the definition and measurement methods used (1). Less is known a... Read More about Cross-sectional prevalence study of urinary and/or anal incontinence and its impact on quality of life in a cohort of individuals with progressive multiple sclerosis.

Qualitative development of a new patient reported outcome measure for underactive bladder (2016)
Presentation / Conference Contribution

Hypothesis / aims of study
The patient experience of underactive bladder (UAB) was explored, for the purpose of developing a Patient Reported Outcome (PRO) measure to assess the symptoms and impact of the condition. UAB is currently proposed as the... Read More about Qualitative development of a new patient reported outcome measure for underactive bladder.

Psychometric equivalence of electronic and telephone completion of the ICIQ modules (2016)
Journal Article

© 2016 Wiley Periodicals, Inc. Aims: To assess the equivalence of touch-screen (hand-held iPad) and telephone completion of patient-completed International Consultation on Incontinence Questionnaire (ICIQ) modules by comparison with corresponding dat... Read More about Psychometric equivalence of electronic and telephone completion of the ICIQ modules.

Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: The ICIQ-IBD (2016)
Journal Article

© 2016 Wolters Kluwer Health, Inc. All rights reserved. Background and aims Faecal incontinence (FI) related to inflammatory bowel disease (IBD) affects up to 74% of patients and is often under-reported in clinical encounters. A previous study found... Read More about Development and initial validation of a disease-specific bowel continence questionnaire for inflammatory bowel disease patients: The ICIQ-IBD.

Using the ICIQ validated bladder diary and questionnaires in lower urinary tract dysfunction (2015)
Presentation / Conference Contribution

Use of the ICIQ modules for the assessment of lower urinary tract symptoms.

The association between the iciq-luts & the iciq-bladder diary in assessing luts (2015)
Presentation / Conference Contribution

The bladder diary (BD) provides an objective non-invasive method of investigating lower urinary tract symptoms (LUTS) while symptom questionnaires, such as the ICIQ-MLUTS (1) and ICIQ-FLUTS (2) for males and females respectively, provide a subjective... Read More about The association between the iciq-luts & the iciq-bladder diary in assessing luts.

Can a PRO be adequate without assessing quality of life? (2015)
Presentation / Conference Contribution

A think tank discussion regarding the adequacy of patient reported outcomes when quality of life is excluded.

Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users (2015)
Journal Article

Aims
Long-term indwelling catheterisation may affect health related quality of life, but clinical assessment and monitoring of people with indwelling catheters is poorly recorded because there are no validated measures to capture these criteria. In... Read More about Development and psychometric evaluation of The ICIQ-LTCqol: A self-report quality of life questionnaire for long-term indwelling catheter users.

The impact of urinary incontinence on health-related quality of life (HRQoL) in a real-world population of women aged 45-60 years: Results from a survey in France, Germany, the UK and the USA (2014)
Journal Article

© 2014 The Authors. BJU International © 2014 BJU International. Objective To develop a clear understanding of the relationship between severity of urinary incontinence (UI) and health-related quality of life (HRQoL) and mental well-being in a populat... Read More about The impact of urinary incontinence on health-related quality of life (HRQoL) in a real-world population of women aged 45-60 years: Results from a survey in France, Germany, the UK and the USA.

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