All Outputs (24)

The psychosocial impact of alopecia in men: A mixed-methods survey study (2024)
Journal Article

Background The most common forms of hair loss in men, alopecia areata (AA) (an autoimmune condition) and androgenetic alopecia (AGA) (pattern baldness), alter individuals' appearance in ways that may impact psychological and social wellbeing. We cur... Read More about The psychosocial impact of alopecia in men: A mixed-methods survey study.

Response to ‘The journey of patients with skin diseases from the first consultation to the diagnosis in a representative sample of the European general population from the EADV burden of skin diseases study’ (2024)
Journal Article

Patients' experiences of primary healthcare and dermatology provision for alopecia (2023)
Journal Article

Background: Alopecia describes a group of dermatological conditions characterised by hair loss, which are either non‐scarring or scarring in nature, and range from bald patches to complete body hair loss, to general thinning. In the UK, the General P... Read More about Patients' experiences of primary healthcare and dermatology provision for alopecia.

Establishing the financial burden of alopecia areata and its predictors (2023)
Journal Article

Background: Alopecia areata (AA) can have a significant impact on wellbeing. Consequently, individuals with AA often seek treatments or products to promote hair regrowth or camouflage their hair loss that incur a financial cost to the individual. Obj... Read More about Establishing the financial burden of alopecia areata and its predictors.

Health professionals’ experiences of supporting British Armed Forces veterans with conflict-related, appearance-altering injuries (2023)
Journal Article

Numerous British Armed Forces personnel have sustained conflict-related injuries that have altered their appearance. Previous evidence indicates this population may be at risk of appearance-related concerns and that civilian health professionals may... Read More about Health professionals’ experiences of supporting British Armed Forces veterans with conflict-related, appearance-altering injuries.

Training health professionals to support patients with appearance-affecting conditions: A pan-European evaluation of an acceptance and commitment therapy approach to patient communication (2023)
Journal Article

AbstractMultidisciplinary health professionals (HPs) are involved in supporting patients who have conditions that affect their appearance. With appearance-associated distress common in this group, acceptance and commitment therapy (ACT) an... Read More about Training health professionals to support patients with appearance-affecting conditions: A pan-European evaluation of an acceptance and commitment therapy approach to patient communication.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

Experiences and impact of the UK lockdown amongst adults who have a facial visible difference (2023)
Journal Article

Globally, COVID-19 has been shown to have had a wide ranging and significant impact on individuals’ daily living, and physical and mental health. However, there are some groups of individuals who may encounter unique challenges with regards to COVID-... Read More about Experiences and impact of the UK lockdown amongst adults who have a facial visible difference.

Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care (2022)
Journal Article

Background/Aims Despite published standards of care, inequities and variations in specialist care delivery in the UK have been identified. Using cleft lip and palate services as an example, this study aims to identify potential facilitators and commo... Read More about Facilitators and barriers to delivering an optimal specialist service: An example from cleft lip and/or palate care.

Men’s experiences of alopecia areata: A qualitative study (2022)
Journal Article

Alopecia areata (AA) affects men at similar rates to women, yet comparatively little is known about men’s experience of the condition. We interviewed a demographically diverse group of 18 men with AA to explore this gap. From qualitative thematic ana... Read More about Men’s experiences of alopecia areata: A qualitative study.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Why a charter for best practice for NHS wig provision? (2022)
Journal Article

Dermatological hair loss (alopecia) is a devastating condition and not ‘just’ cosmetic. Wigs are recommended as a treatment by the British Association of Dermatologists (BAD) and the National Institute for Health and Care Excellence (NICE); however,... Read More about Why a charter for best practice for NHS wig provision?.

An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study (2022)
Journal Article

Background: Mobile apps may offer a valuable platform for delivering evidence-based psychological interventions for individuals with atypical appearances, or visible differences, who experience psychosocial appearance concerns such as appearance-base... Read More about An acceptance and commitment therapy prototype mobile program for individuals with a visible difference: Mixed methods feasibility study.

Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care (2021)
Journal Article

Aim: Despite published standards of care, inequities and variations in specialist care delivery in the United Kingdom have been identified. Using cleft lip and palate (CL/P) care as an example, this study aimed to identify common barriers to deliver... Read More about Facilitators and barriers to delivering an optimal specialist service in the United Kingdom: An example from cleft lip and palate care.

Designing an mHealth intervention for people with visible differences based on acceptance and commitment therapy: Participatory study gaining stakeholders’ input (2021)
Journal Article

Background: Given their growing popularity, mobile health (mHealth) apps may offer a viable method of delivering psychological interventions for people with an atypical appearance (ie, visible difference) who struggle with appearance-related distress... Read More about Designing an mHealth intervention for people with visible differences based on acceptance and commitment therapy: Participatory study gaining stakeholders’ input.

Patients’ experiences of an acceptance and commitment therapy-based approach for psychosocial difficulties relating to an appearance-affecting condition (2020)
Journal Article

Some individuals with appearance-affecting conditions experience psychosocial challenges such as social anxiety and avoidance. Acceptance and Commitment Therapy (ACT) may offer a suitable approach for these challenges. This qualitative study investig... Read More about Patients’ experiences of an acceptance and commitment therapy-based approach for psychosocial difficulties relating to an appearance-affecting condition.

Becoming known: Disclosure and exposure of (in)visible difference. (2020)
Journal Article

Bodily or physical differences constitute a class of potentially stigmatized characteristics. The existing literature confirms that those with appearance altering or disfiguring conditions (“visible differences”) may experience both felt and enacted... Read More about Becoming known: Disclosure and exposure of (in)visible difference..

Experiential avoidance and cognitive fusion mediate the relationship between body evaluation and unhelpful body image coping strategies in individuals with visible differences (2019)
Journal Article

Psychological flexibility, the capacity to be open to any internal stimuli and act in accordance with valued ends, has been identified as an explanatory variable in how people cope with body concerns. The role of psychological flexibility is unexplor... Read More about Experiential avoidance and cognitive fusion mediate the relationship between body evaluation and unhelpful body image coping strategies in individuals with visible differences.

Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objectives: The importance of psychosocial aspects of care has received growing recognition in recent years. However, the evidence base for psychosocial intervention remains limited. Specialist... Read More about Promoting Psychosocial Adjustment in Individuals Born With Cleft Lip and/or Palate and Their Families: Current Clinical Practice in the United Kingdom.

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ) (2019)
Journal Article

Background There has been a lack of a standardized protocol for collection of patient reported outcomes (PRO) and detection of and indication for psychological treatment in cleft care. The objectives of this paper was to translate Cleft Hearing Ap... Read More about Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ).