Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood

Ballard, Lisa M.; Jenkinson, Elizabeth; Byrne, Christopher. D; Child, Jenny. C; Davies, Justin. H; Inskip, Hazel; Lokulo-Sodipe, Oluwakemi; Mackay, Deborah J.G; Wakeling, Emma. L; Temple, I. Karen; Fenwick, Angela

doi:10.1136/archdischild-2018-314952

All Outputs (3)

Experiences of living with visible difference: Individual and social reflections (2019)
Journal Article

Many health conditions impact upon an individual’s appearance and result in an altered appearance (“visible difference”). The presence of visible difference is associated with a variety of psychosocial difficulties and challenges, yet calls for an i... Read More about Experiences of living with visible difference: Individual and social reflections.

Postcards from researchers (2019)
Presentation / Conference Contribution

A workshop, drawing on guerrilla kindness craftivism, to share inspiration and research ideas gained from the BPS creative methods seminar.

Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood (2019)
Journal Article

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2019. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Objective There is limited information on the psychosocial imp... Read More about Lived experience of Silver-Russell syndrome: Implications for management during childhood and into adulthood.