All Outputs (20)

‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary (2023)
Journal Article

Introduction

Those with an altered appearance as a result of injury, health condition or treatment can face stigma, which may contribute to adverse psychosocial outcomes. However, current research tends to focus on supporting individuals themselve... Read More about ‘Scars: How Our Wounds Make Us Who We Are’: Improving appearance-based stigma, conceptualisation of beauty and body esteem through a documentary.

The experiences of young Somali adults with visible facial differences (2023)
Thesis

Background: The term visible difference refers to an appearance that is considered different to the societal ‘norm’, including skin conditions and scars. The psychosocial impact of living with a visible difference is well-documented in the literature... Read More about The experiences of young Somali adults with visible facial differences.

Raising a child with Craniosynostosis: Psychosocial adjustment in parents (2022)
Journal Article

Objective: While knowledge of the psychosocial impact of craniofacial conditions is growing, literature regarding the impact on parents remains limited. Parents of children born with a health condition may be at risk of experiencing a range of psycho... Read More about Raising a child with Craniosynostosis: Psychosocial adjustment in parents.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades (2022)
Journal Article

Objective: This paper describes 20 years of microtia and craniofacial microsomia (CFM) psychosocial and healthcare studies and suggests directions for clinical care and research. Design: A narrative review of papers January 2000 to July 2021 related... Read More about Psychosocial and health-related experiences of individuals with microtia and craniofacial microsomia and their families: Narrative review over two decades.

The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives (2022)
Journal Article

Objectives
Professionals in the United Kingdom providing care to new families affected by cleft lip and/or palate (CL/P) had to adapt to ensure families’ needs were met during a time of uncertainty due to Covid-19. The aims of this study were to exp... Read More about The impact of the Covid-19 pandemic on cleft lip and palate service delivery for new families in the United Kingdom: Medical and community service provider perspectives.

Psychological and physical health outcomes in adults with craniosynostosis (2021)
Journal Article

Objectives: Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified two key questions in this area: 1) What are the long-term phys... Read More about Psychological and physical health outcomes in adults with craniosynostosis.

Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic (2021)
Journal Article

Objectives: Previous literature finds that having a child with a cleft lip and/or palate (CL/P) may pose social and emotional challenges for parents. For parents of children born during the Covid-19 pandemic, such challenges may be heightened. Furthe... Read More about Isolation, uncertainty and treatment delays: Parents’ experiences of having a baby with cleft lip/palate during the Covid-19 pandemic.

Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom (2021)
Journal Article

Objectives: Research has identified adults born with cleft lip and/or palate (CL/P) to be at risk of poorer psychological outcomes compared to the general population. This study investigated factors that may contribute to positive and negative adjust... Read More about Factors associated with psychological adjustment in adults with cleft lip and/or palate: Findings from a national survey in the United Kingdom.

The effectiveness of interventions to improve psychosocial outcomes in parents of children with appearance-affecting health conditions: A systematic review (2020)
Journal Article

Background: Although many cope well, the impact of supporting a child with an Appearance-Affecting Health Condition (AAHC) can place a significant demand on parents. As such, it is vital that families have access to appropriate psychosocial support t... Read More about The effectiveness of interventions to improve psychosocial outcomes in parents of children with appearance-affecting health conditions: A systematic review.

Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom (2019)
Journal Article

Objective: Having a child born with a cleft lip and/or palate (CL/P) poses several challenges for new parents and can have a significant psychological impact on the family as a whole. Previous research has indicated that dissatisfaction with health c... Read More about Satisfaction with health care in families following a diagnosis of cleft lip and/or palate in the United Kingdom.

Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals (2019)
Journal Article

Objective: A diagnosis of a congenital craniofacial condition can have a significant impact on the psychological wellbeing of the affected family. As the first health professionals likely to come into contact with families, non-specialists, such as... Read More about Provision of care for families affected by craniofacial conditions: The views of nonspecialist health professionals.

Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objectives: Despite the potential psychological impact of a diagnosis of cleft lip and/or palate (CL/P) on parents, few large-scale studies currently exist. Utilizing data extracted from The Cle... Read More about Risk and Protective Factors for Psychological Distress in Families Following a Diagnosis of Cleft Lip and/or Palate.

The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objective: The birth of a child with a cleft lip and/or palate (CL/P) can have a significant emotional and social impact on parents. Yet, the impact on the wider family is rarely investigated. G... Read More about The Experiences and Support Needs of Grandparents of Children Born With Cleft Lip and/or Palate.

The effectiveness of interventions aiming to promote positive body image in adults: A systematic review (2019)
Journal Article

© 2019 Elsevier Ltd Theory suggests promoting positive body image (PBI)through interventions would have a significant impact on health and well-being. However, little is known about the effectiveness of existing interventions. This review aimed to id... Read More about The effectiveness of interventions aiming to promote positive body image in adults: A systematic review.

Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip (2019)
Journal Article

© 2019, American Cleft Palate-Craniofacial Association. Objective: In high-income countries, many cases of cleft lip are now identified at the 18- to 21-week pregnancy scan. The manner in which a diagnosis is communicated is vital for long-term paren... Read More about Breaking the News: Parents’ Experiences of Receiving an Antenatal Diagnosis of Cleft Lip.

Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate (2019)
Journal Article

Background: Receiving the news that their child has a health condition, such as a cleft lip and/or palate (CL/P), can have a considerable psychological impact on parents. Yet previous research has highlighted parental dissatisfaction and service-rela... Read More about Parents’ experiences of postnatal diagnosis and care following the birth of a child with cleft lip and/or palate.

Parental views of antenatal testing and termination following a diagnosis of cleft lip (2018)
Journal Article

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Fetal anomaly screening at 18–21weeks now routinely includes cleft lip. If detected, the manner in which the diagnosis is communicated can considerably influence prospective pare... Read More about Parental views of antenatal testing and termination following a diagnosis of cleft lip.

Volunteers Study Summary Report
Report

This report offers a summary of a small-scale study carried out in collaboration with the Appearance Collective (AC; a group of charities in the area of appearance and visible difference). This study was designed in response to a priority set by memb... Read More about Volunteers Study Summary Report.

Health And Appearance Issues In Ethnic And Cultural Minority Groups
Report

This short report, prepared for the Appearance Collective (a group of charities working in the field of appearance and visible difference), offers a brief insight into health and appearance research pertaining to culture and ethnicity. Its objectives... Read More about Health And Appearance Issues In Ethnic And Cultural Minority Groups.