All Outputs (12)

“It means almost forgetting that you've got a disease”: An OMERACT study to define independence in the context of rheumatoid arthritis remission from the patient perspective (2024)
Journal Article

Aims Our previous work identified pain, fatigue, and independence as missing from the ACR/EULAR rheumatoid arthritis (RA) remission criteria from the patient perspective. Validated measures exist for pain and fatigue, but not for independence. As a... Read More about “It means almost forgetting that you've got a disease”: An OMERACT study to define independence in the context of rheumatoid arthritis remission from the patient perspective.

Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs (2024)
Journal Article

Objective: Many clinically extremely vulnerable rheumatology patients have only recently ceased shielding from COVID-19, while some continue to minimise in-person contact. The objective of this study was to understand the impact of shielding and asso... Read More about Qualitative interview study of rheumatology patients’ experiences of COVID-19 shielding to explore the physical and psychological impact and identify associated support needs.

Exploring civil partnership from the perspective of those in mixed-sex relationships: Embracing a clean slate of equality (2023)
Journal Article

Civil partnerships first became available to mixed-sex couples in England and Wales in December 2019. To date, there has been no research exploring the perspectives of mixed-sex couples who choose to become civil partners. We interviewed 21 people, a... Read More about Exploring civil partnership from the perspective of those in mixed-sex relationships: Embracing a clean slate of equality.

P101 Understanding first contact physiotherapists experiences of remote consultations in primary care (2023)
Journal Article

Background/Aims First Contact Physiotherapists (FCPs) assess, diagnose and manage patients presenting with musculoskeletal disorders in primary care, without the need for prior GP consultation. Prior to COVID-19 almost every consultation was conducte... Read More about P101 Understanding first contact physiotherapists experiences of remote consultations in primary care.

The impact of remote consultations on the health and wellbeing of first contact physiotherapists in primary care: A mixed methods study (2023)
Journal Article

Background: First Contact Physiotherapists (FCPs) were introduced to reduce demands on GPs by providing improving access to expert musculoskeletal care. FCPs experience similar workplace stressors to GPs and there is an emerging concern that remote c... Read More about The impact of remote consultations on the health and wellbeing of first contact physiotherapists in primary care: A mixed methods study.

Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models (2022)
Journal Article

Objectives: We conducted the cross-cultural adaptation and validation of the Leeds Satisfaction Questionnaire (LSQ) for patients with rheumatoid arthritis (RA) in Korea. Methods: The adaptation of the LSQ from English into Korean was based on guideli... Read More about Validation of the Korean Leeds satisfaction questionnaire in rheumatoid arthritis with Rasch models.

Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries (2022)
Journal Article

Objectives: To disseminate and assess the level of acceptability and applicability of the European Alliance of Associations for Rheumatology (EULAR) recommendations for patient education among professionals in rheumatology across Europe and three Asi... Read More about Assessing acceptability and identifying barriers and facilitators to implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with rheumatology professionals in 23 European and Asian countries.

Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives (2022)
Journal Article

OBJECTIVES: To explore patients' agreement and reasons for agreement or disagreement with the EULAR recommendations for patient education (PE) for people with inflammatory arthritis (IA). METHODS: This mixed-method survey collected data using snowbal... Read More about Disseminating and assessing implementation of the EULAR recommendations for patient education in inflammatory arthritis: a mixed-methods study with patients' perspectives.

Collaboration between doctoral researchers and patient research partners: Reflections and considerations (2022)
Journal Article

A key principle of working in collaboration with patient research partners (patients contributing to research projects as team members, rather than as participants) is that they should be equal partners with researchers and health professionals. This... Read More about Collaboration between doctoral researchers and patient research partners: Reflections and considerations.

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report (2021)
Journal Article

Objective: To determine how best to incorporate the patient perspective into rheumatoid arthritis remission criteria. Methods: At OMERACT 2020, several studies, including a longitudinal multi-centre study testing the validity of adding patient-valued... Read More about Considerations and priorities for incorporating the patient perspective on remission in Rheumatoid Arthritis: An OMERACT 2020 Special Interest Group report.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.