Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank

Llewellyn, Alison; Buckle, Lisa; Grieve, Sharon; Birklein, Frank; Brunner, Florian; Goebel, Andreas; Harden, R. Norman; Bruehl, Stephen; Vaughan-Spickers, Nicole; Connett, Robyn; McCabe, Candida

doi:10.1097/j.pain.0000000000002729

All Outputs (4)

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study (2023)
Journal Article

OBJECTIVE: To assess the degree of resilience in patients with complex regional pain syndrome (CRPS) 1, to explore the relationship between resilience and patient-related outcome measurements and to describe a pattern of clinical manifestations assoc... Read More about Resilience in patients with complex regional pain syndrome 1-a cross-sectional analysis of patients participating in a cross-sectional cohort study.

Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians (2023)
Journal Article

Introduction: Complex Regional Pain Syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. Guidelines recommend early referral for therapies that promote movem... Read More about Optimising management of complex regional pain syndrome to improve clinical outcomes throughout the therapy care pathway in England: Protocol for a qualitative interview and observational study with patients and clinicians.

Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank (2022)
Journal Article

ABSTRACT: Complex regional pain syndrome (CRPS) clinical trials have historically captured a diverse range of outcomes. A minimum set of CRPS patient-reported outcomes has been agreed for inclusion in a future CRPS international clinical research reg... Read More about Delphi study to define core clinical outcomes for inclusion in a complex regional pain syndrome international research registry and data bank.