Patients' experiences of appearance changes following allogeneic bone marrow transplantation

Russell, Charlotte; Harcourt, Diana; Marks, David Ian; Henderson, Lucy

Abstract

Background: No previous research has explored the impact of the many appearance changes that can occur in patients following bone marrow transplantation (BMT). Objective: This research aimed to explore in depth patients' experiences of appearance changes following allogeneic BMT to address the lack of knowledge in this area. Methods: Semistructured interviews were conducted with 6 men and women who had received an allogeneic BMT within the previous 6 months to 2 years. Interviews were analyzed using interpretative phenomenological analysis. Results: The findings illustrated that appearance changes had an impact on participants' confidence. It was also found that participants appeared to prioritize and view their appearance changes in the context of having a life-threatening treatment and experiencing many adverse effects. Appearance changes were a low priority until the immediate dangers of treatment had subsided and participants were returning to their former roles. In addition, it was also found that the isolation that participants experienced while recovering from transplant seemed to lessen the effects of appearance changes by limiting their exposure to the reactions and perceptions of others. Conclusions: The effects of appearance changes on confidence may become problematic if individuals are still experiencing an altered appearance when returning to former roles. Implications for Practice: This study highlights the need to identify and support those with long-term appearance changes. Copyright © 2011 Lippincott Williams & Wilkins.

• Journal Article Type: Article
• Publication Date: Jul 1, 2011
• Journal: Cancer Nursing
• Print ISSN: 0162-220X
• Electronic ISSN: 1538-9804
• Publisher: Lippincott, Williams & Wilkins
• Peer Reviewed: Peer Reviewed
• Volume: 34
• Issue: 4
• Pages: 315-321
• DOI: https://doi.org/10.1097/NCC.0b013e3181f8f884
• Keywords: appearance, appearance change, cancer, bone marrow transplant, allogeneic, psychology, experience, patient, visible difference, body image
• Public URL: https://uwe-repository.worktribe.com/output/961428
• Publisher URL: http://dx.doi.org/ 10.1097/NCC.0b013e3181f8f884