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Parent's experiences of their child's withdrawal syndrome: A driver for reciprocal nurse-parent partnership in withdrawal assessment

Craske, Jennie; Carter, Bernie; Jarman, Ian; Tume, Lyvonne

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Authors

Jennie Craske

Bernie Carter

Ian Jarman

Lyvonne Tume Lyvonne.Tume@uwe.ac.uk
Associate Professor in Child Health



Abstract

© 2018 Elsevier Ltd Withdrawal assessment in critically ill children is complicated by the reliance on non-specific behaviours and compounded when the child's typical behaviours are unknown. The existing approach to withdrawal assessment assumes that nurses elicit the parents’ view of the child's behaviours. Objective and research methodology: This qualitative study explored parents’ perspectives of their child's withdrawal and preferences for involvement and participation in withdrawal assessment. Parents of eleven children were interviewed after their child had completed sedation weaning during recovery from critical illness. Data were analysed using thematic analysis. Setting: A large children's hospital in the Northwest of England. Findings: Parents experienced varying degrees of partnership in the context of withdrawal assessment and identified information deficits which contributed to their distress of parenting a child with withdrawal syndrome. Most parents were eager to participate in withdrawal assessment and reported instances where their knowledge enabled a personalised interpretation of their child's behaviours. Reflecting on the reciprocal nature of the information deficits resulted in the development of a model for nurse-parent collaboration in withdrawal assessment. Conclusion: Facilitating nurse-parent collaboration in withdrawal assessment may have reciprocal benefits by moderating parental stress and aiding the assessment and management of withdrawal syndrome.

Citation

Craske, J., Carter, B., Jarman, I., & Tume, L. (2019). Parent's experiences of their child's withdrawal syndrome: A driver for reciprocal nurse-parent partnership in withdrawal assessment. Intensive and Critical Care Nursing, 50, 71-78. https://doi.org/10.1016/j.iccn.2018.09.001

Journal Article Type Article
Acceptance Date Sep 4, 2018
Online Publication Date Sep 14, 2018
Publication Date Feb 1, 2019
Deposit Date Sep 10, 2018
Publicly Available Date Sep 15, 2019
Journal Intensive and Critical Care Nursing
Print ISSN 0964-3397
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 50
Pages 71-78
DOI https://doi.org/10.1016/j.iccn.2018.09.001
Keywords critical care, decision-making,family-centered care, iatrogenic withdrawal syndrome, PICU
Public URL https://uwe-repository.worktribe.com/output/851473
Publisher URL https://doi.org/10.1016/j.iccn.2018.09.001
Additional Information Additional Information : This is the author's accepted manuscript. The final published version is available here: https://doi.org/10.1016/j.iccn.2018.09.001

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