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A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research

Griffiths, C.; Armstrong-James, L.; White, P.; Rumsey, N.; Pleat, J.; Harcourt, D.; Griffiths, Catrin; Armstrong-James, Laura; White, Paul; Rumsey, Nichola; Pleat, Jon; Harcourt, Diana

Authors

C. Griffiths

L. Armstrong-James

P. White

N. Rumsey

J. Pleat

D. Harcourt

Paul White Paul.White@uwe.ac.uk
Associate Professor in Applied Statistics

Jon Pleat



Abstract

Crown Copyright © 2014 Published by Elsevier Ltd and ISBI. All rights reserved. Introduction: Patient reported outcome measures (PROMs) can identify important information about patient needs and therapeutic progress. The aim of this review was to identify the PROMs that are being used in child and adolescent burn care and to determine the quality of such scales. Methods: Computerised and manual bibliographic searches of Medline, Social Sciences Index, Cinahl, Psychinfo, Psycharticles, AMED, and HAPI, were used to identify Englishlanguage articles using English-language PROMs from January 2001 to March 2013. The psychometric quality of the PROMs was assessed. Results: 23 studies met the entry criteria and identified 32 different PROMs (31 generic, 1 burns-specific). Overall, the psychometric quality of the PROMs was low; only two generic scales (the Perceived Stigmatisation Questionnaire and the Social Comfort Scale) and only one burns-specific scale (the Children Burn Outcomes Questionnaire for children aged 5-18) had psychometric evidence relevant to this population. Conclusions: The majority of PROMs did not have psychometric evidence for their use with child or adolescent burn patients. To appropriately identify the needs and treatment progress of child and adolescent burn patients, new burns-specific PROMs need to be developed and validated to reflect issues that are of importance to this population.

Journal Article Type Review
Publication Date Jan 1, 2015
Journal Burns
Print ISSN 0305-4179
Electronic ISSN 1879-1409
Publisher Elsevier
Peer Reviewed Peer Reviewed
Volume 41
Issue 2
Pages 212-224
APA6 Citation Harcourt, D., Pleat, J., Rumsey, N., White, P., Armstrong-James, L., Griffiths, C., …Harcourt, D. (2015). A systematic review of patient reported outcome measures (PROMs) used in child and adolescent burn research. Burns, 41(2), 212-224. https://doi.org/10.1016/j.burns.2014.07.018
DOI https://doi.org/10.1016/j.burns.2014.07.018
Keywords patient reported outcome measures (PROMs), child burns, adolescent burns, visible difference
Publisher URL http://dx.doi.org/10.1016/j.burns.2014.07.018

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