Skip to main content

Research Repository

See what's under the surface

Advanced Search

One in Ten Older Adults Aged 45 Years Report Having No-one to Turn to for Help at the End of Life Apart from Professionals - Who are they?

Verne, Julia; Tapp, Alan; Nancarrow, Clive; Morey, Yvette; Warren, Stella

Authors

Julia Verne



Abstract

- Background: There is increased interest in the impact of living alone and loneliness on people’s wellbeing at the end of life and practicality of providing care, especially at home. In a nationally representative sample of 3,590 people aged >45 years surveyed on-line about care at the end of life (EoL) 12% said they had no close family, friends or neighbours that they felt they could turn to for help. Aim: To investigate the characteristics of the 12% who feel they have no-one to turn to (NTTT) Method: Analysis of the sociodemographic characteristics of the NTTT 12% (441 people) compared with those who did declare family, friends or neighbours (FFN) who they reported could help 88% (3149) using the results of the online panel survey. Results: More NTTTs were younger aged 45-69 (77%) than the FFN (71%) and still working 37% vs 26%. The NTTTs were more likely to live in London 19% and urban areas. The NTTTs were less likely to: be married/partnership, have children and grandchildren, have family living with them or nearby, belong to a local club/society/association, belong to a religion. 52% of the NTTT said they had never cared for a relative compared with 38% FFN but of those who had, a higher proportion was for a spouse/partner 17% vs 11% and more likely to have undertaken personal hygiene 38% vs 29% and cared > 50 hours per week 21% vs 12%. When asked who they would want to care fewer NTTTs would want family 26% vs 51% and more professionals 23% vs 16% or a care home 23% vs 12%. Asked why family would not be first choice reasons for NTTTs vs FFNs included: my family would probably prefer not to be involved 14v% vs 9%we don’t get on 8%vs4%, I have no family left 13% vs 7%.The NTTT were more likely to have thought about planning care for themselves. Conclusions: This study has identified and explored the characteristics of a potentially vulnerable group for EOLC. The results will help professionals identify people needing extra state or volunteer input.

Presentation Conference Type Poster
Start Date May 23, 2019
APA6 Citation Verne, J., Tapp, A., Nancarrow, C., Morey, Y., & Warren, S. (2019, May). One in Ten Older Adults Aged 45 Years Report Having No-one to Turn to for Help at the End of Life Apart from Professionals - Who are they?. Poster presented at 16th World Congress of the European Association for Palliative Care (EPAC), Berlin, Germany
Keywords end of life care, palliative care, advanced care planning
;