The validation of the ‘CARe Burn Scale: Parent/Caregiver Form’ - a Patient Reported Outcome Measure (PROM) using Rasch Measurement Theory (RMT) to assess quality of life for parents or caregivers supporting a child with a burn injury

Griffiths, Catrin; Pickles, Timothy; Guest, Ella; Harcourt, Diana

Abstract

A PROM is a measure of patient needs and therapeutic progress. This paper outlines the validation of the CARe Burn Scale: Parent/Caregiver Form, a PROM that measures quality of life in parents/caregivers supporting a child with a burn injury. A literature review and interviews with sixteen parents and six burns health professionals informed the development of the PROM conceptual framework/draft form. Cognitive debriefing interviews with five parents and seven burns-specialist health professionals provided feedback to ascertain content validity, and two-hundred and four parents/caregivers took part in the field testing. Rasch measurement theory (RMT) analyses and internal consistency tests were conducted to create a shortened version and for psychometric validation. The final conceptual framework included eight domains/individual scales: Physical Well-being, Confidence with Managing Burn Wound/Scar Treatments, Social Situations, Partner Relationship, Self-worth, Negative Mood, Parent Concerns about the Appearance of their Child’s Burn Wounds/Scars, and Positive Growth. Seven scales had solutions from RMT analyses and passed internal consistency criteria. Confidence with Managing Burn Wound/Scar Treatments did not fit the Rasch model but was retained as a checklist based on theoretical insight. The CARe Burn Scale: Parent/Caregiver Form is the first and only burn-specific PROM that assesses parents’ own health needs when caring for a child with a burn.

• Journal Article Type: Article
• Acceptance Date: Apr 15, 2025
• Online Publication Date: May 7, 2025
• Publication Date: May 7, 2025
• Deposit Date: Apr 15, 2025
• Publicly Available Date: May 16, 2025
• Journal: European Burn Journal
• Electronic ISSN: 2673-1991
• Publisher: MDPI
• Peer Reviewed: Peer Reviewed
• Volume: 6
• Issue: 2
• Article Number: 22
• DOI: https://doi.org/10.3390/ebj6020022
• Public URL: https://uwe-repository.worktribe.com/output/14313418