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Patient and public involvement in chronic conditions psychotherapy research: Developing a patient–centred psychological intervention for people with multiple sclerosis

Fragkiadaki, Eva; Cotterill, Nikki; Rice, Claire; Smith, Jonathan; Nizza, Isabella

Authors

Eva Fragkiadaki Eva.Fragkiadaki@uwe.ac.uk
Senior Lecturer in Counselling Psychology

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N Nikki Cotterill Nikki.Cotterill@uwe.ac.uk
Professor of Long Term Conditions (Continence Care)

Claire Rice

Jonathan Smith

Isabella Nizza



Abstract

Psychological interventions for Multiple Sclerosis (MS) mainly adhere to the principles of Cognitive Behavioural Therapy, Acceptance and Commitment Therapy and Mindfulness. Adopting these generic models for the care of people with MS places them in the position where they have to fit in the model requirements and procedures. Quantitative results have shown moderate effects for these approaches and the paucity of qualitative findings indicate the difficulties people with MS face when applying, for example, CBT techniques between sessions. The current presentation aims to outline the process of developing a psychological intervention guided by what people with MS have found helpful and how they conceptualise the impact of interventions on their experience and management of MS. The findings generated a list of themes of an integrative group psychological intervention that was then developed further based on research findings, consultation with practitioners and a Patient and Public Involvement (PPI) focus group with members of the Research Network of the UK MS Society. Preliminary results from the feasibility and acceptability study of the intervention will be presented. The concept of process-based psychological intervention development will be discussed as well as adopting idiographic methods of evaluating these interventions.

Citation

Fragkiadaki, E., Cotterill, N., Rice, C., Smith, J., & Nizza, I. (2023, June). Patient and public involvement in chronic conditions psychotherapy research: Developing a patient–centred psychological intervention for people with multiple sclerosis. Presented at Society for Psychotherapy Research 54th International Annual Meeting, Dublin

Presentation Conference Type Speech
Conference Name Society for Psychotherapy Research 54th International Annual Meeting
Conference Location Dublin
Start Date Jun 21, 2023
End Date Jun 24, 2023
Deposit Date Jun 30, 2023
Publicly Available Date Jul 4, 2023
Public URL https://uwe-repository.worktribe.com/output/10898205