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Evaluating the benefit of early patient and public involvement for product development and testing with small companies

Hinton, Elanor C.; Fenwick, Cameron; Hall, Martin; Bell, Mike; Hamilton‐Shield, Julian P.; Gibson, Andrew

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Authors

Elanor C. Hinton

Cameron Fenwick

Martin Hall

Mike Bell

Julian P. Hamilton‐Shield

Andy Gibson Andy.Gibson@uwe.ac.uk
Associate Professor in Patient and Public Involve



Abstract

Introduction: There is a growing understanding of the benefits of patient and public involvement (PPI), and its evaluation, in research. An online version of the CUBE PPI evaluation framework has been developed. We sought to use the CUBE to evaluate the value of early PPI with two small healthcare companies during product development. Methods: Contributors were recruited online and had lived experience of either type 1 diabetes or obesity. Two1-hsessions were run with a company developing a smartphone application to manage diabetes (DEE-EM): one with young people (YP; n = 5) and one with parents (n = 7). Two 1-hsessions were run with a company developing a weight-loss product, both with adults (n = 7 in each session). Sessions were facilitated by an independent University researcher and attended by company representatives, who presented their product. One facilitator led the evaluation of the session by giving a demonstration of the CUBE and asking simple questions in the YP session. Results: A high proportion of contributors completed the CUBE (80.5% DEE-EM; 93% Oxford Medical Products). Responses were positive to all four CUBE dimensions (in italics). Contributors felt there were diverse ways to contribute to the sessions, and that they had a strong voice to add to the discussion. Balance was achieved regarding whose concerns (public or company) led the agenda, and contributors felt that both companies would make changes based on the discussion. The supportive attitude of both companies resulted in most contributors feeling comfortable participating in PPI sessions with the industry, while recognising the profit-making aspect of their work. Conclusions: PPI with small healthcare companies is both feasible and worthwhile. The CUBE framework facilitated the evaluation of the interaction between experts in different knowledge spaces. We provide recommendations for future projects, including considerations of who should participate and the level of implicit endorsement of the product that participation implies. Patient or Public Contribution: People with lived experience of type 1 diabetes or obesity were invited to contribute to one of four PPI sessions, which they then evaluated. One contributor agreed to contribute to the analysis of the evaluation data and interpretation and preparation of the manuscript.

Journal Article Type Article
Acceptance Date Feb 3, 2023
Online Publication Date Feb 14, 2023
Publication Date Jun 1, 2023
Deposit Date Feb 23, 2023
Publicly Available Date Feb 23, 2023
Journal Health Expectations
Print ISSN 1369-6513
Electronic ISSN 1369-7625
Publisher Wiley Open Access
Peer Reviewed Peer Reviewed
Volume 26
Issue 3
Pages 1159-1169
DOI https://doi.org/10.1111/hex.13731
Keywords CUBE framework, evaluation, industry, product development, public and patient involvement
Public URL https://uwe-repository.worktribe.com/output/10465635
Publisher URL https://onlinelibrary.wiley.com/doi/10.1111/hex.13731

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