Fiona E. Fox
"Ur skin is the thing that everyone sees and you cant change it!": Exploring the appearance-related concerns of young people with psoriasis
Fox, Fiona E.; Rumsey, Nichola; Morris, Marianne
Abstract
Purpose: The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discussions between adolescents with psoriasis in order to rapidly identify themes about their support needs. Methods: Three online focus groups were hosted in a real time forum. In total, 8 young people aged 11-18 years were recruited through the websites of psoriasis support organizations. Focus groups lasted an average of 1 hour and data was analysed using grounded theory techniques. Results: Appearance-related concerns are central to the experiences of young people with psoriasis. Participants constructed their individual struggle (It and Me) in physical, emotional, motivational and intellectual terms. A strong sense of Us developed as participants recognized the value of meeting peers with psoriasis. This enabled groups to blame Them for their negative social experiences. Discussion: The findings are discussed in the context of literature around adolescence and appearance. It is suggested that the experience of negative social encounters in adolescence may have long-term implications for appearance anxiety specifically and self-esteem generally. The potential of peer support to improve these outcomes is considered. © 2007 Informa UK Ltd.
Journal Article Type | Article |
---|---|
Publication Date | Oct 16, 2007 |
Journal | Developmental Neurorehabilitation |
Print ISSN | 1751-8423 |
Electronic ISSN | 1751-8431 |
Publisher | Informa Healthcare |
Peer Reviewed | Peer Reviewed |
Volume | 10 |
Issue | 2 |
Pages | 133-141 |
DOI | https://doi.org/10.1080/13638490701217594 |
Keywords | appearance, adolescents, psoriasis, peer support, visible difference |
Public URL | https://uwe-repository.worktribe.com/output/1032696 |
Publisher URL | http://dx.doi.org/10.1080/13638490701217594 |
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