Outputs (121)

Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016 (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective. Among the challenges in conducting clinical trials in large-vessel vasculitis (LVV), including both giant cell arteritis (GCA) and Takayasu arteritis (TA), is the lack of standardized and meaningful o... Read More about Development of a core set of outcome measures for large-vessel vasculitis: Report from OMERACT 2016.

Practice variation in acute bronchiolitis: A pediatric emergency research networks study (2017)
Journal Article

© Copyright 2017 by the American Academy of Pediatrics. BACKGROUND AND OBJECTIVES: Studies characterizing hospitalizations in bronchiolitis did not identify patients receiving evidence-based supportive therapies (EBSTs). We aimed to evaluate intersit... Read More about Practice variation in acute bronchiolitis: A pediatric emergency research networks study.

51 Paediatric emergency clinicians are rarely exposed to non-airway critical procedures: a predict/PERN study (2017)
Journal Article

© 2017, Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions. BACKGROUND: Recent studies suggest that approximately one p... Read More about 51 Paediatric emergency clinicians are rarely exposed to non-airway critical procedures: a predict/PERN study.

Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome (2017)
Journal Article

© 2017 European Pain Federation - EFIC® Background: Complex Regional Pain Syndrome (CRPS) symptoms can significantly differ between patients, fluctuate over time, disappear or persist. This leads to problems in defining recovery and in evaluating the... Read More about Are you better? A multi-centre study of patient-defined recovery from Complex Regional Pain Syndrome.

Community-based home injury risk assessment in rural Nepal (2017)
Thesis

ABSTRACT
Background: Unintentional injuries in the home are an important cause of death and disability among young children globally. However, in many parts of the world, particularly in the Low and Middle-Income Countries (LMICs) like Nepal, there... Read More about Community-based home injury risk assessment in rural Nepal.

Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis (2017)
Journal Article

© 2017, American College of Rheumatology Objective: Raynaud's phenomenon (RP) is the most common manifestation of systemic sclerosis (SSc). RP is an episodic phenomenon, not easily assessed in the clinic, leading to reliance on self-report. A thoroug... Read More about Multinational Qualitative Research Study Exploring the Patient Experience of Raynaud's Phenomenon in Systemic Sclerosis.

Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis (2017)
Journal Article

© 2017, The Author(s). Granulomatosis with polyangiitis (GPA), microscopic polyangiitis (MPA), and eosinophilic granulomatosis with polyangiitis (EGPA) are multisystem diseases of small blood vessels, collectively known as the anti-neutrophil cytopla... Read More about Patient perceptions of glucocorticoids in anti-neutrophil cytoplasmic antibody-associated vasculitis.

The heaviest burdens and life’s most intense fulfilment: A retrospective and re-understanding of my experiences with childhood liver disease and transplantation (2017)
Book Chapter

This chapter presents a personal reflection on my childhood with liver disease, including thoughts on going to school with chronic illness, my family and undergoing transplantation.

The chapter is presented under the framework set out at the begin... Read More about The heaviest burdens and life’s most intense fulfilment: A retrospective and re-understanding of my experiences with childhood liver disease and transplantation.

A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group (2017)
Journal Article

Copyright © 2017. All rights reserved. Objective: The need for a standardized instrument to measure the effect of glucocorticoid (GC) therapy has been well documented in the literature. The aim of the first GC Special Interest Group was to define a r... Read More about A patient-reported outcome measure for effect of glucocorticoid therapy in adults with inflammatory diseases is needed: Report from the OMERACT 2016 special interest group.

Data quality and 30-day survival for out-of-hospital cardiac arrest in the UK out-of-hospital cardiac arrest registry: A data linkage study (2017)
Journal Article

© Article author(s) (or their employer(s) unless otherwise stated in the text of the article) 2017. All rights reserved. No commercial use is permitted unless otherwise expressly granted. Objectives The Out-of-Hospital Cardiac Arrest Outcomes (OHCAO)... Read More about Data quality and 30-day survival for out-of-hospital cardiac arrest in the UK out-of-hospital cardiac arrest registry: A data linkage study.