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Outputs (160)

OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health (2011)
Presentation / Conference Contribution

This workshop reviewed progress in a number of areas related to patient perspective outcomes that were not specifically included within other areas of the program. A substantial review of the work of the valuing health outcomes group (the "QALY" work... Read More about OMERACT 10 patient perspective virtual campus: Valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health.

Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes (2011)
Presentation / Conference Contribution

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 br... Read More about Patient perspective workshop: Moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.