Outputs (10)

In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care (2018)
Journal Article

Copyright © 2018 by Mutaz B. Habal, MD This study describes stressors, resources, and recommendations related to craniofacial microsomia (CFM) care from the perspective of caregivers of children with CFM and adults with CFM to inform improved quality... Read More about In their own words: Caregiver and patient perspectives on stressors, resources, and recommendations in craniofacial microsomia care.

Parental views of antenatal testing and termination following a diagnosis of cleft lip (2018)
Journal Article

© 2018, © 2018 Informa UK Limited, trading as Taylor & Francis Group. Fetal anomaly screening at 18–21weeks now routinely includes cleft lip. If detected, the manner in which the diagnosis is communicated can considerably influence prospective pare... Read More about Parental views of antenatal testing and termination following a diagnosis of cleft lip.

The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Background: As a growing paradigm of health research, trainee collaboratives can influence clinical practice through the generation of cost-effective multicenter audit and research projects. The... Read More about The Cleft Multidisciplinary Collaborative: Establishing a Network to Support Cleft Lip and Palate Research in the United Kingdom.

Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Background: Cleft lip and/or palate (CL/P) poses many challenges for those affected throughout the school years, with recent studies pointing to a trend in poor educational outcomes. Previous re... Read More about Teachers’ Perspectives on the Impact of Cleft Lip and/or Palate During the School Years.

Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Although cleft lip and/or palate (CL/P) has been a focus of psychological research for a number of years, investigation of adjustment to other, rarer craniofacial anomalies (CFAs) has been scarc... Read More about Comparing psychological adjustment across cleft and other craniofacial conditions: Implications for outcome measurement and intervention.

#CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups (2018)
Journal Article

© 2018, American Cleft Palate-Craniofacial Association. Background: More than 2 billion people worldwide now use social networking sites, with an increasing number of users accessing these sites to obtain health information and engage in emotional su... Read More about #CleftProud: A content analysis and online survey of 2 cleft lip and palate facebook groups.

The provision of specialist psychosocial support for people with visible differences: A European survey (2018)
Journal Article

© 2018 A substantial body of research has demonstrated the challenges commonly facing people with visible differences (disfigurements) and explored the potential benefits offered by specialist psychosocial support and intervention for those who are n... Read More about The provision of specialist psychosocial support for people with visible differences: A European survey.

Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives (2018)
Journal Article

© 2018 Elsevier B.V. Objective: Craniofacial microsomia (CFM) is primarily characterized by underdevelopment of the ear and mandible, with several additional possible congenital anomalies. Despite the potential burden of care and impact of CFM on mul... Read More about Healthcare and psychosocial experiences of individuals with craniofacial microsomia: Patient and caregivers perspectives.

Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development (2018)
Journal Article

Satisfaction with appearance is of central importance for psychological well-being and health. For individuals with an unusual appearance, such as congenital craniofacial anomalies (CFA), appearance evaluations could be especially important. However,... Read More about Factors affecting subjective appearance evaluations among patients with congenital craniofacial conditions: An application of Cash’s cognitive-behavioural model of body image development.

Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners” (2018)
Journal Article

© The Author(s) 2018. Background: Since the implementation of centralized services in the United Kingdom for those affected by cleft lip and/or palate (CL/P), several studies have investigated the impact of service rationalization on the delivery of... Read More about Centralization of cleft lip and palate services in the united kingdom: The views of adult “returners”.