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Outputs (18)

The psychosocial impact of cleft lip and/or palate on caregivers and individuals in low- and middle-income countries: A narrative review (2025)
Journal Article

Low- and middle-income countries (LMICs) represent the highest incidence, morbidity, and Disability Adjusted Life Years for cleft lip and/or palate (CL/P) globally. Most cleft care models now include psychosocial support, yet the psychosocial impacts... Read More about The psychosocial impact of cleft lip and/or palate on caregivers and individuals in low- and middle-income countries: A narrative review.

Understanding the psychological impact of medical care experiences on adults with craniofacial conditions: A pilot survey of traumatic stress symptoms and resilience (2025)
Journal Article

Craniofacial conditions often require extensive medical care and surgeries throughout childhood and adolescence. However, there is limited research investigating the psychological effects of craniofacial care including risks for medical traumatic str... Read More about Understanding the psychological impact of medical care experiences on adults with craniofacial conditions: A pilot survey of traumatic stress symptoms and resilience.

Understanding the impact of a cleft camp in Aotearoa New Zealand on sociability, self-esteem and confidence (2025)
Journal Article

Objective: Although camps have been offered previously for cleft and craniofacial conditions, few have been evaluated empirically. This study sought to determine whether a community-led camp peer support event led to improved sociability and self-est... Read More about Understanding the impact of a cleft camp in Aotearoa New Zealand on sociability, self-esteem and confidence.

Combining speech language therapy and clinical psychology for adolescents and adults with CL/P: A pilot clinic in New Zealand (2025)
Journal Article

Objective: This pilot study sought to determine whether adolescent and adult patients benefit from weekly cleft-specific Speech Language Therapy (SLT) services, and to understand how concurrent psychology clinic services influence patient-reported ou... Read More about Combining speech language therapy and clinical psychology for adolescents and adults with CL/P: A pilot clinic in New Zealand.

Surgical decision-making regarding hearing and ear reconstruction in craniofacial microsomia: Exploring caregiver narratives (2025)
Journal Article

Treatment decision-making is an integral but complex part of healthcare, particularly in the context of craniofacial surgeries. The aim of the current study was to explore caregiver narratives to inform future surgical care delivery and best practice... Read More about Surgical decision-making regarding hearing and ear reconstruction in craniofacial microsomia: Exploring caregiver narratives.

Cleft lip and palate research in the United Kingdom: Advances in clinical psychological knowledge and future directions (2025)
Journal Article

In 2012, the James Lind Alliance (JLA) worked with individuals with cleft lip and/or palate (CL/P), their families and clinicians to identify priority areas for future research. This article reviews progress conducted in [country] in the three JLA pr... Read More about Cleft lip and palate research in the United Kingdom: Advances in clinical psychological knowledge and future directions.

Addressing barriers to global multidisciplinary stakeholder inclusivity: Lessons from global orofacial cleft research priority setting (2024)
Journal Article

Background Inclusivity in research priority setting is fundamental to capturing the opinion of all stakeholders in a research area. Globally, experienced healthcare workers often have deep insights that could impactfully shape future research, and a... Read More about Addressing barriers to global multidisciplinary stakeholder inclusivity: Lessons from global orofacial cleft research priority setting.