All Outputs (13)

Seizure management in children requiring palliative care: A review of current practice (2017)
Journal Article

OBJECTIVES: Controlling seizures in children approaching death can be difficult, and there is a limited evidence base to guide best practice. We compared current practice against the guidance for seizure management produced by the Association of Paed... Read More about Seizure management in children requiring palliative care: A review of current practice.

Families' priorities in life-limiting illness: Improving quality with online empowerment (2016)
Journal Article

Objective Improving quality of life (QOL) is the central focus of palliative care support for children with lifelimiting illness (LLI), but achieving this can be challenging. Intervention MyQuality is an online tool that enables families to choose an... Read More about Families' priorities in life-limiting illness: Improving quality with online empowerment.

Advance care planning: Challenges and approaches for pediatricians (2014)
Journal Article

© 2014 Mary Ann Liebert, Inc. Background: There is increasing recognition of the value of advance care planning for children with life-limiting conditions. It is important that we acknowledge and reflect on the challenges that this work presents in o... Read More about Advance care planning: Challenges and approaches for pediatricians.

Was there a plan? End-of-life care for children with life-limiting conditions: A review of multi-service healthcare records (2014)
Journal Article

Background: Planning for care at the end of life (EoL) is an essential component of support and care for families of children with life-limiting conditions. The purpose of this review was to compare documented EoL planning with published children's p... Read More about Was there a plan? End-of-life care for children with life-limiting conditions: A review of multi-service healthcare records.

The experience of mothers caring for a child with a brain tumour (2013)
Journal Article

Background: Brain tumours are the second most common form of childhood cancer, accounting for over 20% of all cases in European children. Understanding the impact of diagnosis and treatment of a brain tumour on the family is an essential pre-requisit... Read More about The experience of mothers caring for a child with a brain tumour.

Developing practice and staff: Enabling improvement in care delivery through participatory action research (2011)
Journal Article

We describe the process and outcomes of a programme to enable improvement in care coordination in a children's hospital. Staff identified care coordination issues they wanted to improve and were facilitated to achieve change using a participatory act... Read More about Developing practice and staff: Enabling improvement in care delivery through participatory action research.

Child and family wishes: A case notes review of end of life care planning for children with life-limiting conditions (2011)
Journal Article

Aim To assess compliance with ACT standards (ACT 2004)
in respect of end of life (EOL) planning for children who died from life-limiting conditions between October 2008 and
March 2010 (defi ned geographical area). Methods Retrospective case note re... Read More about Child and family wishes: A case notes review of end of life care planning for children with life-limiting conditions.

Waiting for surgery after orthopaedic trauma (2009)
Journal Article

Introduction to action research (2009)
Journal Article

Time off the ward: An action research approach to reducing nursing time spent accompanying children to x-ray (2009)
Journal Article

Who does what? How staff in England and Denmark perceive roles in the coordination of children's inpatient care: A comparison of questionnaire survey data (2008)
Journal Article

Aims and objectives. To explore and compare staff perceptions of their own and others roles in the coordination of care for children in hospital in Denmark and England. Background. The provision of well-coordinated care is a declared aim of health ca... Read More about Who does what? How staff in England and Denmark perceive roles in the coordination of children's inpatient care: A comparison of questionnaire survey data.

Providing a children's palliative care service in the community through fixed-term grants: The staff perspective (2007)
Journal Article

Background: Children's palliative care services have recently been awarded fixed-term grants, aimed at improving the provision of care for children with life-limiting conditions in the community. We report findings of a qualitative study to investiga... Read More about Providing a children's palliative care service in the community through fixed-term grants: The staff perspective.

Rules and resources: A structuration approach to understanding the coordination of children's inpatient health care (2006)
Journal Article

Aim. This paper presents findings from a multi-method study exploring the process of care coordination in children's inpatient health care. Background. Existing work on care coordination is typified by 'black-box' type studies that measure inputs to... Read More about Rules and resources: A structuration approach to understanding the coordination of children's inpatient health care.