Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure

Robson, Joanna C.; Almeida, Celia; Dawson, Jill; Bromhead, Alison-; Dures, Emma; Guly, Catherine-; Hoon, Elizabeth-; MacKie, Sarah; Ndosi, Mwidimi; Pauling, John; Hill, Catherine

doi:10.1093/rheumatology/keab076

All Outputs (7)

CO7 Patient reported outcome measure for giant cell arteritis: cross-sectional validation study (2022)
Presentation / Conference Contribution

POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis (2022)
Presentation / Conference Contribution

Background
Giant cell arteritis (GCA) is caused by inflammation of the blood vessels of the head and neck; patients can present with cranial, ocular or large vessel vasculitis involvement. Treatment is with glucocorticoids, steroid sparing agents a... Read More about POS0003 Development and validation of a disease specific patient reported outcome for giant cell arteritis.

P301 Patient reported outcome measure for giant cell arteritis: Clinical testing (2022)
Presentation / Conference Contribution

Background/Aims
Giant cell arteritis (GCA) presents in people over 50, with headaches, visual involvement and large vessel vasculitis. A 30-item GCA-specific patient reported outcome measure (GCA PRO) was developed and tested in a clinical setting t... Read More about P301 Patient reported outcome measure for giant cell arteritis: Clinical testing.

OA23 Patient-reported outcome measure for giant cell arteritis: Cross-sectional validation study (2022)
Presentation / Conference Contribution

Development and validation of a patient reported outcome measure for giant cell arteritis (2021)
Presentation / Conference Contribution

Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data (2021)
Journal Article

Objective: To explore patient perceptions of physical activity in giant cell arteritis (GCA). Methods: This was a multinational qualitative study, analyzing interview data collected from participants from the UK (n=25) and Australia (n=11) with a def... Read More about Patient perceptions of physical activity after a diagnosis of giant cell arteritis: Analysis of multinational qualitative data.

Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure (2021)
Journal Article

Objectives: GCA is a large vessel vasculitis (LVV) presenting with headache, jaw claudication, musculoskeletal and visual involvement. Current treatment is glucocorticoids and anti-IL-6 tocilizumab in refractory disease. The objective of this study w... Read More about Patient perceptions of health-related quality of life in giant cell arteritis: International development of a disease-specific patient-reported outcome measure.