All Outputs (7)

'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis (2011)
Journal Article

Objectives: To identify the information needs of patients newly diagnosed with systemic lupus erythematosus (lupus), to inform the design of a future education package. Methods: Focus groups were conducted in seven rheumatology centres in the UK with... Read More about 'It's more scary not to know': A qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article

Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy (2011)
Journal Article

Objectives To investigate the effect of group cognitive behavioural therapy (CBT) for fatigue self-management, compared with groups receiving fatigue information alone, on fatigue impact among people with rheumatoid arthritis (RA). Methods Two-arm, p... Read More about Self-management of fatigue in rheumatoid arthritis: A randomised controlled trial of group cognitive-behavioural therapy.

Men's experiences of rheumatoid arthritis: An inductive thematic analysis (2011)
Journal Article

Objectives. There is a lack of evidence for understanding the clinical needs of men with rheumatoid arthritis (RA). This study investigated the psychosocial experience of this group, to inform clinical practice and generate further research. Methods.... Read More about Men's experiences of rheumatoid arthritis: An inductive thematic analysis.

European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects (2011)
Journal Article

Objective: To develop recommendations to enable successful inclusion of the patient perspective in European League Against Rheumatism (EULAR)-funded scientific research projects. Methods: The EULAR standardised operational procedures for guideline de... Read More about European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects.

Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis (2011)
Journal Article

Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as y... Read More about Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants (2011)
Journal Article

Persistent postsurgical pain is a prevalent but underacknowledged condition. The aim of this study was to assess the prevalence, sensory qualities, and postoperative determinants of persistent pain at 3 to 4 years after total knee replacement (TKR) a... Read More about Persistent pain after joint replacement: Prevalence, sensory qualities, and postoperative determinants.