“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives

McWilliams, Danielle; Thornton, Maia; Hotton, Matthew; Swan, Marc; Stock, Nicola

doi:10.1177/10556656241236006

All Outputs (4)

Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries (2024)
Journal Article

Alongside typical parenting challenges, initial condition-specific research suggests that parents of children with different visible differences may experience similar psychosocial difficulties. Despite this, large-scale cross-condition research to i... Read More about Cross-condition risk and protective factors for psychosocial distress in parents and carers of children and young people with appearance-affecting conditions and injuries.

Parental concerns about genital differences in children with congenital adrenal (2024)
Journal Article

Background Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal.

Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention (2024)
Journal Article

BACKGROUND: Congenital Adrenal Hyperplasia (CAH) due to 21-hydroxylase deficiency (21HD) can affect the in utero development of the genital anatomy of people with the 46XX karyotype. Health professionals engage parents in decision-making regarding ma... Read More about Parental concerns about genital differences in children with congenital adrenal hyperplasia persist regardless of the selected intervention.

“It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives (2024)
Journal Article

Objectives Treatment for cleft lip and/or palate (CL/P) in the United Kingdom is administered on a standardised pathway from diagnosis to early adulthood, with options to be re-referred in later life. At age 16, patients become responsible for their... Read More about “It’s on your shoulders now” Transitioning from child-to-adult UK cleft lip/palate services: An exploration of young adults' narratives.