All Outputs (65)

Approaching parents to take part in a cleft gene bank: A qualitative pilot study (2012)
Journal Article

Objective: A gene bank, comprising genetic material and environmental and family history data, is being established in the United Kingdom to improve the understanding of the etiology of orofacial clefting (OFC). This study aimed to identify factors t... Read More about Approaching parents to take part in a cleft gene bank: A qualitative pilot study.

Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi- (2011)
Journal Article

The psychosocial impact of Epidermolysis bullosa (2011)
Journal Article

Epidermolysis bullosa (EB) is a disease in which the skin blisters in response to minimal friction, causing painful wounds. Despite the potentially severe nature of epidermolysis bullosa, research on the psychosocial issues is scarce. The aims of the... Read More about The psychosocial impact of Epidermolysis bullosa.

'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa (2010)
Journal Article

Objectives: Professionals working with people who encounter pain and suffering can experience adverse emotional effects themselves. However, to provide effective support it is necessary to understand specific work-related experiences and contexts. Th... Read More about 'You're whatever the patient needs at the time'; The impact on health and social care professionals of supporting people with epidermolysis bullosa.

Fluctuations of body image states in daily life: an exploration of women’s experiences (2006)
Journal Article