All Outputs (193)

The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer (2023)
Presentation / Conference Contribution

Title: The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer Objectives/purpose: Development of clinical recommendations to improve experiences of chronic... Read More about The development of clinical recommendations to improve experiences of chronic pain after cancer treatment for people living with and beyond cancer.

Disclosing the obvious: Psychosocial implications of (not) explaining facial differences (2023)
Journal Article

Although the disclosure of invisible stigmatized identities has been frequently researched, little work has examined disclosure of facial differences (FD), in which stigma is often highly visible. People with FD are frequently expected by others to d... Read More about Disclosing the obvious: Psychosocial implications of (not) explaining facial differences.

Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes? (2023)
Journal Article

Having a visible difference caused by an appearance-altering condition or injury can impact psychosocial wellbeing. It remains unestablished whether the time at which a visible difference manifests, namely pre-memory (congenital) or later (acquired),... Read More about Do congenital and acquired causes of visible difference predict distinct appearance-related psychosocial outcomes?.

Experiences and impact of the UK lockdown amongst adults who have a facial visible difference (2023)
Journal Article

Globally, COVID-19 has been shown to have had a wide ranging and significant impact on individuals’ daily living, and physical and mental health. However, there are some groups of individuals who may encounter unique challenges with regards to COVID-... Read More about Experiences and impact of the UK lockdown amongst adults who have a facial visible difference.

Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects (2022)
Journal Article

Purpose: Head and neck cancer (HNC) patients are at risk of long-term body image distress (BID). We aimed to investigate the severity of BID in long-term HNC survivors and to explore the associations between sociodemographic and clinical factors, pat... Read More about Body image concerns in long-term head and neck cancer survivors: Prevalence and role of clinical factors and patient-reported late effects.

What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review (2022)
Journal Article

Aim: To identify and review the success of non-pharmaceutical, non-surgical biopsychosocial interventions in individuals with endometriosis, in managing pain and improving body image. Methods: Cochrane, EBSCO, IBSS, NICE, Open Grey, OVID, Proquest, S... Read More about What is the evidence of effectiveness of non-pharmaceutical, non-surgical, biopsychosocial interventions for body image and pain management in individuals with endometriosis? A systematic review.

The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients (2022)
Journal Article

Purpose: Androgen deprivation therapy (ADT) for Prostate Cancer (PCa) is associated with side effects that could lead to negative body image and low masculine self-esteem of survivors. We compared a group of PCa survivors following ADT with ADT-naïve... Read More about The impact of hegemonic masculine ideals on self-esteem in prostate cancer patients undergoing androgen deprivation therapy (ADT) compared to ADT-naïve patients.

Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study (2022)
Journal Article

Background: Burn injuries affect more than 60,000 children every year in the UK, with many experiencing scarring as a result. Scarring can be highly variable, and research is required to explore the factors that may influence variability, as well as... Read More about Exploring parents’ attitudes towards a multicentre cohort study of children with burns injuries: A qualitative interview study.

A systematic review of interventions aiming to promote positive body image in children and adolescents (2022)
Journal Article

Evidence shows interventions can improve positive body image in adult women. This systematic review examined the evidence of efficacy of interventions that aimed to increase positive body image in children and young people aged under 18 years. The au... Read More about A systematic review of interventions aiming to promote positive body image in children and adolescents.

Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study (2022)
Journal Article

Purpose: The provision of practical and emotional support for men who have been diagnosed with breast cancer in the UK falls primarily on their partners, close family members or friends. However, informal carers’ experiences are omitted from the rese... Read More about Exploring the experiences and psychosocial support needs of informal carers of men with breast cancer: A qualitative study.

Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries (2022)
Journal Article

A modest but significant number of military personnel sustained injuries during deployments resulting in an altered-appearance (e.g., limb loss and/or scarring). Civilian research indicates that appearance-altering injuries can affect psychosocial we... Read More about Body image and psychosocial well-being among UK military personnel and veterans who sustained appearance-altering conflict injuries.

The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury (2022)
Journal Article

The CARe Burn Scales are a suite of burn-specific PROMs for adults, children, young people, and parents affected by burns. This study aimed to determine the responsiveness and minimal important difference (MID) values of the Adult Form for use in adu... Read More about The CARe Burn Scale—Adult Form: Identifying the responsiveness and Minimal Important Difference (MID) values of a Patient Reported Outcome Measure (PROM) to assess quality of life for adults with a burn injury.

Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers (2021)
Journal Article

Background: The CARe Burn Scales are a portfolio of burn-specific PROMs for people affected by burns, including a Child Form (for children < 8 years (Parent-proxy)), a Young Person Form (for young people aged 8 -17 years), an Adult Form, and a Parent... Read More about Testing the responsiveness of and defining MID (minimal important difference) values for the CARe Burn Scales: Patient-reported outcome measures (PROMs) to assess quality of life for children and young people affected by burn injuries, and their parents/caregivers.

Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence (2021)
Presentation / Conference Contribution

Introduction: Chronic post-cancer treatment pain (CPCTP) is pain caused by cancer treatments, such as chemotherapy, radiotherapy or surgery (1). The prevalence of CPCTP affects many cancer ranges from 24 to 48% of people who have finished cancer t... Read More about Health care professionals’ views regarding chronic post cancer treatment pain in cancer survivors: understanding, experience and confidence.

Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study (2021)
Journal Article

Objectives Patient activation covers the skills, abilities and behaviour that impact how able and willing someone is to take an active role in self-managing their health. This study explored clinical and psychosocial factors associated with patient a... Read More about Factors associated with patient activation in inflammatory arthritis: A multisite cross-sectional study.

Oncoplastic breast surgery: A guide to good practice (2021)
Journal Article

Oncoplastic Breast Surgery has become standard of care in the management of Breast. Cancer Patents. These guidelines written by an Expert Advisory Group; convened by the Association of Breast Surgery (ABS) and the British Association of Plastic, Reco... Read More about Oncoplastic breast surgery: A guide to good practice.

"Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury (2021)
Journal Article

Children and young people (CYP) with appearance-affecting conditions/injuries report common pervasive psychosocial difficulties, regardless of cause, nature or extent of their visible differences. Parents or carers can also experience psychosocial di... Read More about "Have we done enough?" A cross-condition exploration of the experiences of parents caring for a child with an appearance-affecting condition or injury.

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study (2021)
Journal Article

Introduction: An important aspect of self-management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM... Read More about Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study.

An exploration into the experience, needs and service provision for cancer survivors living with persistent pain (2021)
Presentation / Conference Contribution

The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish (2021)
Journal Article

Background: Burn injury can dramatically deteriorate health-related quality of life. Effective burn care may minimize the impact of the burn injury and ensure optimal functional outcome. This requires continuous improvement in burn care and assessmen... Read More about The CARe Burn Scale—Adult Form: Translation and linguistic validation into Finnish.