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Living with semantic dementia: A case study of one Family's experience

Wilkinson, Ray; Kindell, Jacqueline; Sage, Karen; Wilkinson, Raymond; Keady, John

Authors

Ray Wilkinson

Jacqueline Kindell

Karen Sage karen.sage@uwe.ac.uk

Raymond Wilkinson

John Keady



Abstract

Semantic dementia is a variant of frontotemporal dementia and is a recently recognized diagnostic condition. There has been some research quantitatively examining care partner stress and burden in frontotemporal dementia. There are, however, few studies exploring the subjective experiences of family members caring for those with frontotemporal dementia. Increased knowledge of such experiences would allow service providers to tailor intervention, support, and information better. We used a case study design, with thematic narrative analysis applied to interview data, to describe the experiences of a wife and son caring for a husband/father with semantic dementia. Using this approach, we identified four themes: (a) living with routines, (b) policing and protecting, (c) making connections, and (d) being adaptive and flexible. Each of these themes were shared and extended, with the importance of routines in everyday life highlighted. The implications for policy, practice, and research are discussed. © The Author(s) 2014.

Journal Article Type Article
Publication Date Mar 1, 2014
Journal Qualitative Health Research
Print ISSN 1049-7323
Electronic ISSN 1552-7557
Publisher SAGE Publications
Peer Reviewed Peer Reviewed
Volume 24
Issue 3
Pages 401-411
APA6 Citation Wilkinson, R., Kindell, J., Sage, K., Wilkinson, R., & Keady, J. (2014). Living with semantic dementia: A case study of one Family's experience. Qualitative Health Research, 24(3), 401-411. https://doi.org/10.1177/1049732314521900
DOI https://doi.org/10.1177/1049732314521900
Keywords case studies, dementia, families, caregiving, interviews, semistructured, narrative inquiry
Publisher URL http://dx.doi.org/10.1177/1049732314521900




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