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User involvement in UK cancer services: Bridging the policy gap

Barley, V.; Daykin, N.; Tritter, Jonathan; Evans, S.; Mcneill, J.; Palmer, N.; Rimmer, J.; Sanidas, M.; Turton, P.


V. Barley

N. Daykin

Jonathan Tritter

S. Evans

J. Mcneill

N. Palmer

J. Rimmer

M. Sanidas

P. Turton


Recent UK government initiatives aim to increase user involvement in the National Health Service (NHS) in two ways: by encouraging service users to take an active role in making decisions about their own care; and by establishing opportunities for wider public participation in service development. The purpose of this study was to examine how UK cancer service users understand and relate to the concept of user involvement. The data were collected through in-depth interviews, which were analysed for content according to the principles of grounded theory. The results highlight the role of information and communication in effective user involvement. Perhaps more importantly, this study suggests that the concept of user involvement is unclear to many cancer service users. This paper argues the need for increased awareness and understanding of what user involvement is and how it can work.


Daykin, N., Barley, V., Evans, S., Tritter, J., Mcneill, J., Palmer, N., …Turton, P. (2003). User involvement in UK cancer services: Bridging the policy gap. European Journal of Cancer Care, 12(4), 331-338.

Journal Article Type Article
Publication Date Dec 1, 2003
Journal European Journal of Cancer Care
Print ISSN 0961-5423
Publisher Wiley
Peer Reviewed Peer Reviewed
Volume 12
Issue 4
Pages 331-338
Keywords user involvement, cancer services, UK, cancer care
Public URL
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