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Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain (2023)
Presentation / Conference
Armoogum, J., Hepburn, J., Prior, M., McCabe, C., Harcourt, D., Llewellyn, A., …Gibson, A. (2023, November). Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain. Poster presented at UKONS, Cardiff, Wales

Background. Patient and Public Involvement (PPI) can help shape research. It is important to capture the impacts that PPI have on cancer nursing doctoral research. Methods: Two Public Contributors, who were cancer survivors living with chronic post... Read More about Evaluation of the impacts of patient and public involvement on cancer nursing doctoral study exploring cancer survivors’ experiences of living with chronic post cancer treatment pain.

Chronic post cancer treatment pain – how can we increase unity across pathways? (2023)
Presentation / Conference
Armoogum, J., Llewellyn, A., Harcourt, D., Foster, C., & McCabe, C. (2023, November). Chronic post cancer treatment pain – how can we increase unity across pathways?. Poster presented at UKONS, Cardiff, Wales

Background: Chronic post cancer treatment pain is pain that persists or recurs for longer than three months and is caused by surgery, chemotherapy and/or radiotherapy . It can occur months or years after cancer treatment has finished. Limited knowl... Read More about Chronic post cancer treatment pain – how can we increase unity across pathways?.

Is there a role for citizen science in death and dying research? (2023)
Journal Article
Wilkinson, C., Llewellyn, A., & McCabe, C. (2023). Is there a role for citizen science in death and dying research?. Frontiers in Public Health, 11, Article 1241239. https://doi.org/10.3389/fpubh.2023.1241239

The COVID-19 pandemic has brought conversations about death and dying to the fore in a way not experienced for generations. This raises questions around perceptions of death and dying; the role of healthcare and the community in care; and the use of... Read More about Is there a role for citizen science in death and dying research?.

The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research (2023)
Journal Article
Eccleston, C., Begley, E., Birkinshaw, H., Choy, E., Crombez, G., Fisher, E., …Keogh, E. (2023). The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research. PAIN, 164(10), 2143-2147. https://doi.org/10.1097/j.pain.0000000000002951

We present a framework for the study of states of chronic pain and transitions between those states. We capture in the framework the dynamic nature of pain: people live with pain that changes over time. First, we offer definitions of both acute and c... Read More about The establishment, maintenance, and adaptation of high and low impact chronic pain: A framework for biopsychosocial pain research.

Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study (2023)
Journal Article
Coggins, J., Grieve, S., Hart, D., Llewellyn, A., Palmer, M., Boichat, C., & McCabe, C. (2023). Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study. BMJ Open, 13(5), Article e070920. https://doi.org/10.1136/bmjopen-2022-070920

INTRODUCTION: Complex regional pain syndrome (CRPS) is a disabling and distressing chronic pain condition characterised by a range of sensory, motor, autonomic and trophic symptoms. UK guidelines recommend therapy interventions to help normalise touc... Read More about Sensory training system for use at home by people with complex regional pain syndrome in England: Protocol for a proof-of-concept study.

The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives (2022)
Presentation / Conference
Coggins, J., McCabe, C., Walsh, N., Pearon, J., Rolls, C., Collins, C., & Llewellyn, A. (2022, September). The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives. Poster presented at International Association for the Study of Pain 2022 World Congress on Pain, Toronto, Canada

Background and Aims Complex Regional Pain Syndrome (CRPS) is a severe chronic pain condition which usually occurs following limb trauma[1] and causes significant burden to individuals and society. The UK has a small number of specialist CRPS centres... Read More about The challenges of managing Complex Regional Pain Syndrome throughout the care pathway - reporting therapists' perspectives.

‘It’s there, it’s in front of your face if you put on the radio or the TV’: COVID-19, perceptions of death and dying and the context of public engagement (2022)
Journal Article
Llewellyn, A., Wilkinson, C., McCabe, C., Byron, J., Madel, L., & Wilson, A. (2022). ‘It’s there, it’s in front of your face if you put on the radio or the TV’: COVID-19, perceptions of death and dying and the context of public engagement. Palliative Medicine, 36(1 Suppliment), 3-122. https://doi.org/10.1177/02692163221093145

Background/aims: The COVID-19 pandemic has brought conversations about death and dying to the fore. Prior studies indicate that holding conversations about the future and end of life planning is beneficial but can be very difficult. Therefore, it is... Read More about ‘It’s there, it’s in front of your face if you put on the radio or the TV’: COVID-19, perceptions of death and dying and the context of public engagement.

Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study (2021)
Journal Article
McCabe, C., Cramp, F., Gauntlett-Gilbert, J., & Davies, B. (2021). Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study. Pain and Rehabilitation, 50, 14-21

Objective Painful diabetic neuropathy (PDN) is a common complication of diabetes. This study explored the experience and impact of living with PDN. Design People with PDN were recruited through local NHS clinics and by national advertisement in di... Read More about Peoples’ experiences of painful diabetic neuropathy: A qualitative interview study.

Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial (2021)
Journal Article
Lewis, J. S., Newport, R., Taylor, G., Smith, M., & McCabe, C. S. (2021). Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial. European Journal of Pain, 25(7), 1551-1563. https://doi.org/10.1002/ejp.1766

Background: Effective treatment of longstanding Complex Regional Pain Syndrome (CRPS) is a challenge, as causal mechanisms remain elusive. People with CRPS frequently report distorted subjective perceptions of their affected limb. Evidence of pain re... Read More about Visual illusions modulate body perception disturbance and pain in Complex Regional Pain Syndrome: A randomized trial.

The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis (2020)
Journal Article
Sweeney, A. M. T., McCabe, C., Flurey, C. A., Robson, J. C., Berry, A., Richards, P., & Ndosi, M. (2021). The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis. Journal of Clinical Nursing, 30(1-2), 145-160. https://doi.org/10.1111/jocn.15531

Introduction: Management of rheumatoid arthritis has changed dramatically over the last decade and is characterised by early start of intensive treatment and tight monitoring of disease activity until remission. The role of nurse-led care at early... Read More about The patient perspective of nurse-led care in early rheumatoid arthritis: A systematic review of qualitative studies with thematic analysis.